NHMike wrote:I live and work in NH so I feel your pain. I think that it's more cold sensitivity than neuropathy but I get arthritic feelings in my fingers and hands when I wake up which might be related. I work inside but still have to scrape ice and snow and have to walk around when it is quite cold outside. I use a balaclava and ski goggles when it is cold and windy and try not to leave any skin exposed. I also bought an electric kettle because I need water and drinks slightly above room temperature. It is a royal pain (or brutal would be a better word).
I have seen many of our members suffer from the Oxaliplatin with a variety of symptoms, some of them quite long-lasting. I'm just trying to get through winter. There are times when I seriously want to stop this stuff. I do often feel like a WIMP on this stuff. I think that it might be easier if you don't have to work (as in short-term disability or retired), but many of us don't have that as a realistic option.
You have been on a long, tough journey.
PeterG wrote:So, calcium infusions (or even oral dosing) seem to have some effect. I am looking for some scientific authority. Found the linked article below that was somewhat enlightening, and will send it to my poor, overworked, indulgent ONC., but wondering if anyone else has experimented with any of the prescription or herbal treatments discussed in the attached NCBI, NIH article.
zephyr wrote:My oncologist kept offering gabapentin and I kept refusing. I just didn't want another drug in my system; I can't completely explain why. But then my sister was at a party and starting talking with a friend-of-a-friend who was a Stage IV colon cancer survivor and an M.D. She mentioned the neuropathy and he told her to tell me to take the gabapentin because you don't want to set up mental pathways that register "pain," etc. when there is no real source. So I decided to try the gabapentin. It took a few tries to get the right dose: not so much that I felt drugged the next morning but not so little that it didn't have enough effect. (All of these meds seem so Goldilocks to me.) I finally settled on 300 mg. in the evening which doesn't completely eliminate the neuropathy but takes the edge off.
I hope you're able to find some relief.
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