MIRAFIBER - MALTODEXTRIN

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GreenMonkey
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Joined: Wed Jun 12, 2013 5:43 am
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MIRAFIBER - MALTODEXTRIN

Postby GreenMonkey » Thu Feb 08, 2018 12:31 pm

Hello Everyone,
My quality of life was challenged by excessive stool elimination (10 to 20 times a day). I could not keep food in my system for more than 30 minutes. I felt constant urge/pressure. I had amazing results using miraFIBER caplets but they no longer make them. They have the powder, but I prefer the tablets/caplets. I believe the ingredient that is so beneficial to me is the maltodextrin. Other fiber supplements do not work. As I understand it, Maltodextrin is made from corn, rice, potato starch or wheat. Even though it comes from plants it is highly processed. I tried increasing my diet with rice, bananas, etc but nothing compares to taking just one of these tablets. For me, it really is a miracle.

What works for you? Avoiding trigger foods is not enough, nor is following the BRAT diet.

Thank you!

Shannon
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

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peanut_8
Posts: 2314
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: MIRAFIBER - MALTODEXTRIN

Postby peanut_8 » Thu Feb 08, 2018 12:56 pm

Hi Shannon,

If I'm understanding correctly, you can still get the powder but not the caplets. Have you considered making your own caplets from the powder? I haven't tried this, but it sounds pretty simple, and the hardware not excessively costly. https://www.powdercity.com/pages/capsule-machine-diy

Best Wishes,
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: MIRAFIBER - MALTODEXTRIN

Postby O Stoma Mia » Thu Feb 08, 2018 2:11 pm

Hi Shannon -

Thanks for checking in and sharing the Mirafiber tip. I haven't seen you around for a long time, and actually I was wondering how you were doing these days. It's good to see you online again.

Do you still maintain your greenmonkeytales blog, or have you moved everything over to Facebook now?
.

rockhound
Posts: 113
Joined: Fri Jul 14, 2017 5:00 pm

Re: MIRAFIBER - MALTODEXTRIN

Postby rockhound » Thu Feb 08, 2018 3:47 pm

Metamucil (powder and wafers) has been good for me, but it sounds like I need to try the mirafiber sometime!
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
1/18 - 5mm polyp removed during colonoscopy
5/18 - CT, NED
11/18 - CT, NED

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GreenMonkey
Posts: 336
Joined: Wed Jun 12, 2013 5:43 am
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Re: MIRAFIBER - MALTODEXTRIN

Postby GreenMonkey » Mon Feb 19, 2018 7:11 pm

thank you everyone for your reply. the powder does not seem to work as well (maybe because of the added sugar?).

I am doing well. had a big surgery last year in march (complete hysterectomy and double hernia repair) but all is good. I just wish I could eat normally. I am a lot less social because of the bathroom issues. I don't blog or write very much anymore. happy to be here amongst the living!
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

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CRguy
Posts: 9675
Joined: Sun Feb 10, 2008 6:00 pm

Re: MIRAFIBER - MALTODEXTRIN

Postby CRguy » Mon Feb 19, 2018 10:18 pm

GreenMonkey wrote: I am a lot less social because of the bathroom issues.
I don't blog or write very much anymore.
happy to be here amongst the living!


That just about sums up my past as well :shock:

BUTT ... still marching stubbornly into the unknown = future
may yours be long and happy my friend !

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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