GREAT news to share!

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jep
Posts: 92
Joined: Sun Jun 11, 2017 7:45 pm

GREAT news to share!

Postby jep » Wed Feb 07, 2018 3:41 pm

Hi everyone! So happy to share that after 9 LONG months, my husband's last surgical drain has finally been removed. I can't express how happy and relieved we both feel right now. This means that his fistula has finally healed naturally, and he WILL NOT need surgery! In 2-3 weeks he can start swimming again and he can even drink beer (which was forbidden with his fistula). This also means that his maintenance chemo does not need to be postponed! All good news. Thanks to everyone for all of your responses and support. I have learned so much from this forum and it's helping us navigate this surreal new norm.
-jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed
PET Scan 10/17/18: 3 positive lymph nodes
Irinotecan + Vectobix (started in November 2018)

AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

Re: GREAT news to share!

Postby AussieAssCancer » Wed Feb 07, 2018 8:15 pm

HUZZAH!!!

I’ll have a beer for him as well :wink:

AAC
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GREAT news to share!

Postby Shana » Wed Feb 07, 2018 10:12 pm

Great news! I'm sure you're all relieved :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

deebashari
Posts: 15
Joined: Wed Feb 07, 2018 2:51 am

Re: GREAT news to share!

Postby deebashari » Thu Feb 08, 2018 5:10 am

Amazing to hear. It goes to show that even in a dark tunnel you still can find light and find your way back. May he always be healthy. God is good. :)

jep
Posts: 92
Joined: Sun Jun 11, 2017 7:45 pm

Re: GREAT news to share!

Postby jep » Thu Feb 08, 2018 5:40 am

Thank you AAC and Shana! Yes, it's a small victory for him (us), but not really that small. The thought of another surgery on his colon to fix that fistula was weighing so heavily on everyone. We're thrilled and ready to move forward! Thanks again for the support and insight.
jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed
PET Scan 10/17/18: 3 positive lymph nodes
Irinotecan + Vectobix (started in November 2018)

LisaMargo
Posts: 21
Joined: Sun Feb 26, 2017 10:26 pm

Re: GREAT news to share!

Postby LisaMargo » Thu Feb 08, 2018 6:53 am

Congratulations Jep that is wonderful news!
20 feb 17 Went in for a colonoscopy, woke up with cancer
21 feb 17 LAR descending colon, Stage 3c
27 mar 17 port in
29 mar 17: 12 sessions FOLFOX.
51 yo F, married with 3 teenage girls

jep
Posts: 92
Joined: Sun Jun 11, 2017 7:45 pm

Re: GREAT news to share!

Postby jep » Thu Feb 08, 2018 10:39 am

Yes, thank you everyone, but we may have celebrated too soon. My husband woke up with a fever this morning, so of course I immediately thought sepsis . . . maybe they took the drain out too soon . . . my husband thinks he may have the flu and it's just a crazy coincidence that he's having sypmtoms the day after the surgical drain came out. We both work in public schools, so the germs are everywhere. He's been so healthy throughout chemo and everything, so we weren't expecting this. Going for a flu test today, and then he will meet with his surgeon today as well (unless the flu test is positive . . . no need to spread that around). Hopefully this is just another hurdle that we will conquer together! Hope everyone is doing well and staying healthy during this winter season.
Thanks!
jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed
PET Scan 10/17/18: 3 positive lymph nodes
Irinotecan + Vectobix (started in November 2018)

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: GREAT news to share!

Postby Caat55 » Thu Feb 08, 2018 12:03 pm

It's so good to hear great Wes. Congratulations!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

User avatar
juliej
Posts: 2872
Joined: Thu Aug 05, 2010 12:59 pm

Re: GREAT news to share!

Postby juliej » Thu Feb 08, 2018 3:24 pm

jep wrote:Yes, thank you everyone, but we may have celebrated too soon. My husband woke up with a fever this morning, so of course I immediately thought sepsis . . . maybe they took the drain out too soon . . . my husband thinks he may have the flu and it's just a crazy coincidence that he's having sypmtoms the day after the surgical drain came out. We both work in public schools, so the germs are everywhere. He's been so healthy throughout chemo and everything, so we weren't expecting this. Going for a flu test today, and then he will meet with his surgeon today as well (unless the flu test is positive . . . no need to spread that around). Hopefully this is just another hurdle that we will conquer together! Hope everyone is doing well and staying healthy during this winter season.
Thanks!
jep

Crossing fingers it's just the flu! (Funny how cancer changes the things we wish for :D )

In case it's the fistula though, I would check to see if onc/surgeon wants him on an antibiotic just to be safe.

Best of luck to you!
Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

jep
Posts: 92
Joined: Sun Jun 11, 2017 7:45 pm

Re: GREAT news to share!

Postby jep » Thu Feb 08, 2018 3:40 pm

Yes, juliej, we were both kind of disappointed that it wasn't the flu! His surgeon has put him on 2 antibiotics just to be safe, but he's not overly concerned right now. He told us to call him if the fever persists or if my husband starts to have abdominal pain of any kind.
Thank you!
jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed
PET Scan 10/17/18: 3 positive lymph nodes
Irinotecan + Vectobix (started in November 2018)

henry123
Posts: 138
Joined: Sun Oct 08, 2017 3:25 am

Re: GREAT news to share!

Postby henry123 » Fri Feb 09, 2018 12:45 am

Best wishes to your husband.
He will be alright soon.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

DarknessEmbraced
Posts: 3155
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GREAT news to share!

Postby DarknessEmbraced » Mon Feb 12, 2018 12:23 pm

Wonderful news! I hope his chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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