Worried Wife-Please Help Me

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Caat55
Posts: 528
Joined: Sat Dec 23, 2017 6:01 pm

Re: Worried Wife-Please Help Me

Postby Caat55 » Thu Feb 08, 2018 12:24 pm

Tricia,
Mine dropped to 7. It's took me three months of eating well, trying iron supplements in many forms. But I had been bleeding probably from either colitis or tumor. The only supplement I could tolerate was Floradix. A vegetable based tablet.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

Lee
Posts: 5695
Joined: Sun Apr 16, 2006 4:09 pm

Re: Worried Wife-Please Help Me

Postby Lee » Thu Feb 08, 2018 12:59 pm

LPL wrote:
Lee wrote:
Weight gain is a good sign that it is not cancer. Weight loss is usually associated with colon cancer. I had weight loss prior to my diagnoses. Know that colon cancer is one of the slower growing cancers, especially in the beginning.

Hi Lee, hubby and I have said to each other: Hm.. wonder if our GP would have reacted/investigated if hubby had told him that he lost 2 kilo in a month. That was the only(!) sign he had before he got totally blocked.
Every 2 years he had done a screen test that came recommended in the post. Every time it was good news... apart from that small weight loss, he had NO signs until totally blocked and emergency colostomy and .. stage IV.
Now we recommend colonoscopy to all our friends.

Good Luck to you Starr12 !
Keeping my fingers crossed for good news for your DH !


I was actually trying to loose weight when I was diagnosed, so I just assumed I was doing all the right things when I lost a few pounds. After I was diagnosed, the shock of it, I lost all desires to eat, thus I was losing weight fast. That is when my Onc said to stop losing weight. It was hard, butt I did not loose anymore weight. After that and over the next 3 years, I gradually gained a lot of weight. I would be 3 1/2 years out from diagnoses when my Onc allowed me diet "slowly". Thus I joined Weight Watchers.

In the late 1970's, a friend of mine, her dad lost 20 pounds and he felt great, it was the next 20 pounds that got his attention. Not sure if he had other symptoms, butt they exploratory surgery on him and found the rectal cancer. He woke up with the bag, started chemo, died about 6 month following his surgery. He was only 46. There has been a lot of advancements in the past 50 years.

Colon cancer can be very sneaky,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Worried Wife-Please Help Me

Postby LPL » Thu Feb 08, 2018 4:47 pm

Hi Lee,
That must have been a shock finding out that your ’good’ diet results was due to CRC ! And also your friend experiencing the same :cry:
Regarding my DHs tiny(!) weight loss, I was surpriced that it was his only symptom but I shouldn’t really since I’ve read so many here had no symptoms at all.. some just finding out due to a checkup colonoscopy.
Yes ! It is very sneaky this CRC.

Star12, wishing that your DHs tests will show something that will be easy to treat!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

DarknessEmbraced
Posts: 3137
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Worried Wife-Please Help Me

Postby DarknessEmbraced » Mon Feb 12, 2018 12:27 pm

I'm sorry you and your husband are going through this and hope you will get answers soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Starr12
Posts: 7
Joined: Sun Feb 04, 2018 8:32 am

Re: Worried Wife-Please Help Me

Postby Starr12 » Fri Feb 16, 2018 4:24 pm

Good Afternoon,

I wanted to give you all an update. My husband had his colonoscopy and endoscopy today and he has internal hemmroids and an inflamed hiatal hernia, which may be the causation to his iron deficiency anemia.

He doesn’t have any polyps or tumors in his stomach or colon. His doctor wants him to have an X-ray of his small intestine just to rule out anything else.

His iron deficiency anemia is being treated with iron infusions.

Otherwise, all went well today.

I am very grateful for being able to share my concerns here with this group.

Thank you to those who helped me these past two weeks.

I wish you all the best.

Tricia

User avatar
LeonW
Posts: 347
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Worried Wife-Please Help Me

Postby LeonW » Fri Feb 16, 2018 7:58 pm

Congrats with the results so far.
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

Caat55
Posts: 528
Joined: Sat Dec 23, 2017 6:01 pm

Re: Worried Wife-Please Help Me

Postby Caat55 » Sat Feb 17, 2018 2:00 pm

Awersome news!!!!!!
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

mpbser
Posts: 474
Joined: Wed Apr 19, 2017 11:52 am

Re: Worried Wife-Please Help Me

Postby mpbser » Sun Feb 18, 2018 5:37 am

Yay! Very good news!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

User avatar
LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Worried Wife-Please Help Me

Postby LPL » Sun Feb 18, 2018 10:02 am

Wonderful news! :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

NHMike
Posts: 1735
Joined: Fri Jul 21, 2017 3:43 am

Re: Worried Wife-Please Help Me

Postby NHMike » Sun Feb 18, 2018 10:15 am

Starr12 wrote:Good Afternoon,

I wanted to give you all an update. My husband had his colonoscopy and endoscopy today and he has internal hemmroids and an inflamed hiatal hernia, which may be the causation to his iron deficiency anemia.

He doesn’t have any polyps or tumors in his stomach or colon. His doctor wants him to have an X-ray of his small intestine just to rule out anything else.

His iron deficiency anemia is being treated with iron infusions.

Otherwise, all went well today.

I am very grateful for being able to share my concerns here with this group.

Thank you to those who helped me these past two weeks.

I wish you all the best.

Tricia


No cancer is a fantastic result. There maybe some work to clean up the other problems but he's fortunate.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

cgb13
Posts: 2
Joined: Tue Aug 07, 2018 4:08 pm

Re: Worried Wife-Please Help Me

Postby cgb13 » Tue Aug 07, 2018 5:00 pm

Hello,

I am kind of in a similar boat - just diagnosed this week (i'll put a front page post up shortly, definitely have some questions, sad to join, happy the community looks so inviting) - I was dieting and exercising all year, and losing weight. But an amount that I was expecting and at a normal healthy rate. Then symptoms started getting worse and I abandoned my diet, and I ended up gaining back all the weight I lost pretty quickly. When the doctor asked if I was losing weight I had a good laugh - since it was quite the opposite (and is costing me $100 - I did a online dietbet)! I guess Chipotle > rectal cancer when it comes to weight loss/gain.

Other interesting aspect, I too had ongoing consistent bloody BMs for several months, including some with significant amounts of blood. My wife was concerned, so I got tested a several times over the period, and every time my RBC count and labs came back perfectly normal - it wasn't until the last test that it showed low iron.

Chris
35yo male - father of 1 (3 months)
Dx Stage IIIc - T3N2M0 8/15/18


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