Postby rockhound » Wed Feb 07, 2018 9:00 am
Aqx99 wrote:I took a dose of Citrucel today and it seems to have done the job. I have now swung to the clustering side of things. I'm just glad I don't feel the need to strain anymore, that had me nervous so soon after surgery. I guess I just need to find a balance.
I'm still working on that balance and my reversal was in late September! I have found that it takes time but improvement can occur. My first two weeks were liquid lava, then I started on metamucil and it instantly improved- so very much the opposite problem at first. I added 1/2 tab of immodium because I was flying (3.5 flight there not that good; 3. hr flight home with immodium, so so nice!) and have kept that up as well. Now sometimes I swing to more constipated side of things, so I'm trying to drink more water and also have upped the metamucil a bit more so that I'm now taking 1.5 to 2 tablespoons, per my surgeon's instructions. Food definitely affects things too- more salads, more fiber (bean burritos!) = more pooping. Anyway it's an experiment so don't be afraid to try things out, little bit at a time.
45 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
5/18 - CT, NED
11/18 - CT, NED
5/19 - CT, NED..moving to yearly CT scans
5/20 - CT, NED
5/21 - CT, NED (4 yr. scan)