Thank you, Everyone, for your support and stories and links.
You GUYS! You're so amazing.
Some of the info seems so obvious but yet I needed to read it again to remember or absorb it. Also, it is clear that we have shared -- and yet so varied -- experiences. One of us with IBD (or anything, for that matter) does not necessarily predict the outcome for another, etc.
Ron, info about you and your bro -- very interesting! Lee -- yes, inflammation, regardless of Crohn's or UC diagnosis, can be breeding ground. Canada -- wow! Thanks for helping me learn not to kick myself for neglecting to check up on things earlier. But also -- HOW did it go undetected with yearly colonoscopies? I'm really surprised to read that.
Ppanamared -- Thanks for your support.
Greenlakegirl -- Wow! Yes, I knew we were predisposed, but I don't know, my doc seemed to suggest it was in the FUTURE, even though I'd had CD for 20 years already. Also, I was so busy having babies, dealing with breastfeeding/mastitis/thrush, taking care of their needs, that I figured my colon was the least of my concerns. I had a sigmoidoscopy in there somewhere, but apparently that was not useful. Also, no, I didn't realize about the complete colostomy. Also, YES, low-grade inflammation can be present despite symptoms being managed. I TRULY think this was my... downfall -- not really realizing this. Thanks.
Menreeq/OStomamia -- thanks for the links!
I wish you all continued wellness, and I really appreciate those of you that have stuck around to offer support to us newbies. I hope I will be doing that some day, myself.
Dx 2/2017, age 45, 2 kids: 6 yrs & 3 yrs
History of Crohn's disease - dx in 1997; in remission, thus no colonoscopy in over 10 years
Anemia dx 11/16: GI doc assured me "the likelihood of colon cancer" was "very low".
Stage 3C - T3N2b
8/64 lymph nodes; clear margins surgery 3/17
12 cycles of Folfox 4/17-9/17
3-month CT scan midway through chemo, no changes
2-3-mo CT scan post chemo 11/17 slightly larger lung nod (incr. from 7mm to 8 or 9mm)
CT scan 3/18 - NED
clear CT scan 1/2019 NED