Postby kandj » Tue Feb 06, 2018 11:19 am
Bschreibs wrote:I am thinking about getting a second opinion at MD Anderson. Does anyone have a specific doctor there they love? Please let me know. Thanks
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I noticed in a previous reply you are stage 4 with numerous mets to the liver. You also said you were going to go to Sloan. Did you meet with Dr. Kemeny? Did it not go well?
We live outside of Houston and MD Anderson was there first place we sought help for DH. He was/is in a very similar situation as yourself. Multiple mets throughout his liver at diagnosis. MDAnderson (Saw Dr. Aloia) was not helpful at all. they told us there wasn't anything they could do. DH was just told to continue with his treatments (chemo) and there was a less than 5% chance he would ever be surgery ready. So they were little help unfortunately. We then sought out Dr. Kemeny and he got the pump and had surgery about 9 months after his original diagnosis. He was NED for 14 months, and had a recurrence about 6 months ago. He had 4 mets return and had IMRT for those in December. He has a scan this weekend, hoping to see good results from the Radiation and continued chemo.
Best of luck to you. I hope someone is able to give you a treatment plan
wife to DH, dx 8/15 stage IV @36, 12+ liver Mets
HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count)
Liver Recurrence 7/2017-radiation
Lung met 10/18 VATS
lung/adrenal gland recurrence 11/19
Adrenal ablation 2/20 VATS 3/20
Radiation: 9/20 adrenal gland, 2/21 pancreatic node
9/2021 liver, 4/22 esophageal node
7/2023 proton therapy: liver
140+ rounds of chemo and counting
Chest nodes, lung nodules, and esophageal nodes currently.