Reversal is Over

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Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Reversal is Over

Postby Aqx99 » Fri Mar 02, 2018 9:22 am

I don't want to jinx myself, but I have started having one bowel movement a day. They are well formed and a large volume. I never thought I would get to this point, especially so soon after my reversal.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

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Atoq
Posts: 306
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal is Over

Postby Atoq » Fri Mar 02, 2018 9:35 am

That’s really fantastic! Nice to hear that LARS is not the rule.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

Caat55
Posts: 515
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal is Over

Postby Caat55 » Fri Mar 02, 2018 10:01 am

:D Yahoo!
You give those of behind you on the race hope. Thank you!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

NHMike
Posts: 1700
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal is Over

Postby NHMike » Fri Mar 02, 2018 6:06 pm

Aqx99 wrote:I don't want to jinx myself, but I have started having one bowel movement a day. They are well formed and a large volume. I never thought I would get to this point, especially so soon after my reversal.


Glad to hear it. Hope to be there one of these days.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Basil
Posts: 243
Joined: Thu Mar 16, 2017 12:33 pm

Re: Reversal is Over

Postby Basil » Fri Mar 02, 2018 9:23 pm

To those facing (should be IMO looking forward to) surgery - I was reversed last September. Bowel function is great. No issues day-to-day. Live, work and play without any concern about bathrooms. A lot of folks turn out well.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear

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O Stoma Mia
Posts: 1426
Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad:

Re: O/T.Water quality testing

Postby O Stoma Mia » Sat Mar 10, 2018 1:26 am

Aqx99 wrote:I am a water treatment plant operator ....

Just a question about water quality testing. Do you test for nitrogen and pesticide residues in your water treatment plant? Is there a problem with groundwater contamination where you live?

https://www.pipestonestar.com/articles/well-testing-available-soon-in-select-townships/
... The federal drinking water standard for nitrate is 10 parts per million (ppm). Above this level, nitrate can have negative effects on human health....

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susie0915
Posts: 840
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal is Over

Postby susie0915 » Sat Mar 10, 2018 8:55 am

That is awesome you guys are doing so well. I do daily enemas which has provided me with a normal life. Tried for 15 months had some good days where I thought I was fine but just too many days of clustering. The 30 minutes in the bathroom doing the enema is so much better. Not everyone gets LARS and there are such varying degrees, that we all just have to figure out what works for us. Continued success to both of you. Glad to hear of your success.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: O/T.Water quality testing

Postby Aqx99 » Sat Mar 10, 2018 2:21 pm

O Stoma Mia wrote:
Aqx99 wrote:I am a water treatment plant operator ....

Just a question about water quality testing. Do you test for nitrogen and pesticide residues in your water treatment plant? Is there a problem with groundwater contamination where you live?

https://www.pipestonestar.com/articles/well-testing-available-soon-in-select-townships/
... The federal drinking water standard for nitrate is 10 parts per million (ppm). Above this level, nitrate can have negative effects on human health....


The chemists for my water system test for those and other contaminants. We are always well below the limit. I operate the plant, which means my tests are limited to the actual water treatment process within the plant. I test for chlorine residual, pH, turbidity, fluoride, taste & odor, filterability, carbon dioxide, hardness and alkalinity at every stage of the process. I also do bacteriology testing on the water within the plant. We are a surface water plant, which means we pull from the nearby river, not from well dug in to the ground water. Our chemists test the river water as well, so we know what we are dealing with when it enters our plant.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy


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