Reversal is Over

Please feel free to read, share your thoughts, your stories and connect with others!
Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Reversal is Over

Postby Aqx99 » Tue Jan 23, 2018 7:00 pm

It took about 3 hours for my reversal surgery today. There was a ton of scar tissue my surgeon had to deal with when he got in there. I have an incision down my belly about 5 inches long. At least that explains why I woke up in excruciating pain!
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

User avatar
CRguy
Posts: 9592
Joined: Sun Feb 10, 2008 6:00 pm

Re: Reversal is Over

Postby CRguy » Tue Jan 23, 2018 7:05 pm

Tell'em damn straight !!! .... get that pain under control NOW !

heal gently and keep bugging them for pain control

Hugs 'n Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
susie0915
Posts: 840
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal is Over

Postby susie0915 » Tue Jan 23, 2018 7:26 pm

Hope your feeling better soon
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

User avatar
Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Reversal is Over

Postby Robino1 » Tue Jan 23, 2018 7:39 pm

I'm glad that is now done and you can now take the time to heal.

:)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Reversal is Over

Postby Aqx99 » Tue Jan 23, 2018 8:01 pm

CRguy wrote:Tell'em damn straight !!! .... get that pain under control NOW !

heal gently and keep bugging them for pain control

Hugs 'n Harmony
CRguy


To add insult to injury, I pressed the call button for more pain meds, and pressed and pressed. Then tried to yell for help. Finally, I texted my mom at home and she called the hospital. My bell was broken and there was no room phone. My pain level of 5 became a 9 by the time they came to give me my pain meds, half an hour after I started trying to call for it!
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

User avatar
Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Reversal is Over

Postby Robino1 » Tue Jan 23, 2018 8:08 pm

Please tell me they fixed your call button!!!!! :shock:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Reversal is Over

Postby Aqx99 » Tue Jan 23, 2018 8:12 pm

Robino1 wrote:Please tell me they fixed your call button!!!!! :shock:


Yes, and they brought me a phone and wrote their phone numbers down for me.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

heiders33
Posts: 275
Joined: Sat Nov 04, 2017 11:08 am

Re: Reversal is Over

Postby heiders33 » Tue Jan 23, 2018 8:18 pm

I’m so sorry! I’ve only ever heard of reversal recovery being relatively easy, but clearly that’s not always the case. I hope you feel better soon!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump

Tdubz
Posts: 130
Joined: Sun May 07, 2017 11:01 am

Re: Reversal is Over

Postby Tdubz » Tue Jan 23, 2018 8:37 pm

Congrats! Another step done in your journey.

User avatar
Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Reversal is Over

Postby Robino1 » Tue Jan 23, 2018 8:48 pm

Aqx99 wrote:
Robino1 wrote:Please tell me they fixed your call button!!!!! :shock:


Yes, and they brought me a phone and wrote their phone numbers down for me.


Excellent. Good thing you had the sense to call mom! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Caat55
Posts: 513
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal is Over

Postby Caat55 » Tue Jan 23, 2018 9:28 pm

Maybe another room or a new call button. Yelling can't be good for the healing. Heal quickly Anne.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
O Stoma Mia
Posts: 1424
Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad:

Re: Reversal is Over

Postby O Stoma Mia » Wed Jan 24, 2018 12:09 am

I'm sorry to hear that you are having so much pain. It must be difficult having to deal with the pain from the incision as well as the pain from the after-effects of radiation at the same time. Do what you need to keep the pain under control right now, but remember that the use of the industrial-strength pain relievers for a long time can cause constipation, and this, in turn, can cause other problems.

My doctor took me off the heavy-duty pain medication after 2 days and rationed me with 2 Tylenol pills per day after that.

Some other tips on post-reversal recovery are given here in a previous post:
.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46439&p=339652#p339652

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Reversal is Over

Postby Aqx99 » Wed Jan 24, 2018 3:02 am

O Stoma Mia wrote:I'm sorry to hear that you are having so much pain. It must be difficult having to deal with the pain from the incision as well as the pain from the after-effects of radiation at the same time. Do what you need to keep the pain under control right now, but remember that the use of the industrial-strength pain relievers for a long time can cause constipation, and this, in turn, can cause other problems.

My doctor took me off the heavy-duty pain medication after 2 days and rationed me with 2 Tylenol pills per day after that.

Some other tips on post-reversal recovery are given here in a previous post:
.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46439&p=339652#p339652


I always try my best to wean myself off the pain meds as quickly as possible. As it stands now, they allow me to ask every 3 hours, I am averaging about every 4 hours or so before I feel I need to ask for them. I'm trying to use sleep to stretch out my doses.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

Lee
Posts: 5666
Joined: Sun Apr 16, 2006 4:09 pm

Re: Reversal is Over

Postby Lee » Wed Jan 24, 2018 2:27 pm

I hope you are doing better. That sounds horrible what you had to endure.

Take care of yourself,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
O Stoma Mia
Posts: 1424
Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad:

Re: Reversal is Over

Postby O Stoma Mia » Thu Jan 25, 2018 1:13 am

Has the Pelvic Health Center nurse been to see you in the hospital yet? Maybe she can give some hints on how to manage pain once you leave the hospital. Perhaps there are some ointments or creams that have Lidocaine, Xylocaine or something similar that would help with your radiation-induced pain and skin problems.

Has your mother come to the hospital yet, or is she still at home? She might be able to help out with things at the hospital before you are discharged.

How is it going now? Has there been any reduction in pain level? Are you able to get up and walk around a little?


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: BUD2016, Yahoo [Bot] and 45 guests