I am getting ready for a new scan, but right now I am so low cancer is my last worry.
Our 20 year old son is experiencing severe, and I mean severe, constipation, along with testicle pain, urinary frequency and nighttime urination, a swollen red throat with a small lump on the front of his neck, an eye disease his optho is battling with 2 different drops...so odd, all these unrelated symptoms.
He’s having a colonoscopy next week, because even though my genetic counselor said I was negative for Lynch, my tumor had all the markings of Lynch and tests for genetics aren’t ever perfect. She recommended colonoscopy for all our kids definitely by 25. Ex-lax doesn’t even make him go, it just hurts his stomach and rectum. Linzess makes him have diarrhea, so at least he’s not getting impacted.
We saw a rheumatologist today on advice of the optho, and he did loads of blood work since my son’s ANA was weakly elevated. He has other symptoms of inflammation and I guess we will know in a few weeks if that’s a factor.
It seems as if his body is attacking itself.
How do you deal with such uncertainty knowing your cancer could come back and your loved one may be ill and you won’t be able to care for them? I don’t know if I will have a cancer reoccurrence, but it weighs heavily.
And his constipation? The worst. He just cannot go. Even mag citrate takes a day to make him have a hard bowel movement. He has to strain terribly, and he seems to have lost the urge to move his bowels at all.
I am a mess. Thanks for letting me vent.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Colonoscopy 10/5/2017 clear