How old are you? Does colon cancer run in your family? Ever been scoped in the past?
I’m 43. I have been scoped 6-7 times before due to blood in my stool. At one point I was diagnosed with Crohn’s Disease, and then it was backpeddled to IBD, ramped up to UC, and back down to IBS. Frankly, I just gave up worrying about it... Until now. My mom had Crohn’s and in 2015 died suddenly of small-cell carcinoma that had metastasized to the liver with no known origin. She went from belly ache to dead in 8 days. Before she passed she was unable to see an oncologist - thus there is no definitive diagnosis. The hospice nurse talked us out of an autopsy (BIG mistake). So, while the usual culprit for small-cell is lung cancer, her lungs were clear on x-ray. So... I don’t know. There are some colon cancers that are small cell... Both my maternal grandmother and her mother (great grandmother) had IC of some sort. My maternal grandfather and his father (my great grandfather) died of lung cancer.
I was just reviewing my Colonoscopies, and it appears in 4/2012 a hyperplastic polyp in the rectum was removed and in 12/2012, a sigmoid polyp was removed and “colonic mucosa with focal hyperplastic changes” in the sigmoid were noted. I had a colonoscopy in 2016, and no polyps were removed, biopsies were taken, but I don’t seem to have those biopsy results.
Today, I saw the Uro-Gynocologist, whose care I am currently under due to rectocele/enterocele/cystocele that was the focus of the MRI defecography and the procedure in which the focal thickening was visualized. Today, my doctor said that after he consulted with the radiologist, the sigmoid colon looks as if my colon was dissected and sewn back together, but I have never had bowel surgery. Because I have never had bowel surgery, the radiologist was quite insistent with my doctor that I get a colonoscopy. My doctor called the focal thickening a possible “lesion”. I flat out asked if it could be cancer, and he said, “well, that’s what they are concerned about, but I just don’t think that’s likely.” FWIW, my mother was told in the ER that if she had cancer “it was the most unusual presentation” that doctor have ever seen, and he did not believe she had cancer. So, I’m taking my Uro-gynecologist’s lack of concern with a grain of salt.
So, in short, it appears that I have some sort of “lesion” in my sigmoid based off the “focal thickening of the sigmoid colon” that looks like my bowel had been resectioned with a history of bloody stools, IBD symptoms, as well as hyperplastic rectal polyp, and a sigmoid polyp with colonic mucosa with focal hyperplastic changes. Recent routine blood tests were normal.
ANY insight would be appreciated. My colonoscopy is scheduled for 2/8 and that date can’t come fast enough! I was moderately obsessing before today’s appointment, and as someone posted on another post, I am severely afflicted with OGD (obsessive googling disorder). I figured the best place to get the best answers and support were from the experts - patients in the trenches that have a better handle on what it means to have colon cancer than the world’s best doctors.
Thanks in advance for your help.