another anniversary

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Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

another anniversary

Postby Ron50 » Sun Jan 21, 2018 4:05 pm

Another year ,still cancer free. My cancer was removed on this day in 1998. I have survived cancer free for twenty years. I have been very fortunate to get this far and there has been a lot of collateral damage along the way. I spent the second day of this year in hospital after collapsing at home with a severe vertigo attack. They treated me for dehydration . They did a couple of ecgs and have now dxed me with atrial fib. I am now on warfarin. I still take cyclosporine twice a day for nephrotic syndrome of the kidneys. I have moderate auto immune hepatitis and serongative poly arthritis. Since cancer I have had acute pancreatitis and lost my gallbladder. Survival has not been easy. I am now 67 and still working four days a week. Best wishes to all. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: another anniversary

Postby Lee » Sun Jan 21, 2018 4:56 pm

Congratulations on a major anniversary. You have always been an inspiration to me when I was just a few years out from my surgery. If you could, can you update your anniversary on this thread. "For stage III's: NED for how long now?"

viewtopic.php?f=1&t=10574&hilit=Ned+how+long+stage+iii

It really could help some people who are just starting this journey.

Again congratulations,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: another anniversary

Postby susie0915 » Sun Jan 21, 2018 5:29 pm

Congratulations! It is awesome.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

mozart13
Posts: 154
Joined: Fri Dec 09, 2016 7:38 pm
Location: Toronto

Re: another anniversary

Postby mozart13 » Sun Jan 21, 2018 6:20 pm

Congrats !!!
55 year at the time of diagnosis, male
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach 8)
I don’t come much to the forum , so if this is not updated it means I remain negative!
Wish good luck to all!

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: another anniversary

Postby Robino1 » Sun Jan 21, 2018 8:22 pm

It is so encouraging that you have made this 20 anniversary. I'm so sorry that the 'cure' has left such a mark on your health.

Your journey is inspiring to all of us that are in the midst of battle. Thank you for being here.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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CRguy
Posts: 10147
Joined: Sun Feb 10, 2008 6:00 pm

Re: another anniversary

Postby CRguy » Sun Jan 21, 2018 9:18 pm

Hey Ron
you are a stalwart member here and always show us what is possible
with good spirits and Cheers !

Wishing you all the best my friend and thank you for continuing to be a supporter and role model for the rest of us.

Harmony bro'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Dori W
Posts: 32
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Re: another anniversary

Postby Dori W » Mon Jan 22, 2018 4:22 pm

Congratulations on this big anniversary! I'm coming up on ten years in a few months. I can hardly believe it.

I'm sorry for your health struggles. It sounds very, very difficult.
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts

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mmckenz13
Posts: 4
Joined: Sat Jan 13, 2018 10:46 am
Facebook Username: Mark McKenzie

Re: another anniversary

Postby mmckenz13 » Mon Jan 22, 2018 4:31 pm

Congratulation Ron and thanks for sharing your story.

I am only 8 months into my cancer story and would love another 19 years to continue telling it.
Diagnosed 06/04/17, age 48
Right Hemi-Colectomy 06/19/17
Stage 2b colon cancer, T4aN0M0
Lymph-vascular invasion undetermined
0/50 lymph nodes
No chemo, no radiation
CT Scan moved up due to high recurring fatique of undetermined cause - 01/12/18
Enlarged Lymph nodes revealed by CT
PET Scan - 01/22/18
NED - 01/23/18

Tdubz
Posts: 152
Joined: Sun May 07, 2017 11:01 am

Re: another anniversary

Postby Tdubz » Mon Jan 22, 2018 6:38 pm

Awesome news! Congrats!

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WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: another anniversary

Postby WriterGirl1969 » Mon Jan 22, 2018 11:27 pm

Ron50 wrote:Another year ,still cancer free. My cancer was removed on this day in 1998. I have survived cancer free for twenty years. I have been very fortunate to get this far and there has been a lot of collateral damage along the way. I spent the second day of this year in hospital after collapsing at home with a severe vertigo attack. They treated me for dehydration . They did a couple of ecgs and have now dxed me with atrial fib. I am now on warfarin. I still take cyclosporine twice a day for nephrotic syndrome of the kidneys. I have moderate auto immune hepatitis and serongative poly arthritis. Since cancer I have had acute pancreatitis and lost my gallbladder. Survival has not been easy. I am now 67 and still working four days a week. Best wishes to all. Ron.


You are a true warrior and survivor, Ron. It's always good to be reminded that sometimes cancer doesn't win, and that there is hope. Life after chemo is hard, but it's life. Here's to the next 20 years for all of us.

Cheers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: another anniversary

Postby TXLiz » Mon Jan 22, 2018 11:55 pm

Congratulations and enjoy your victory.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

mariane
Posts: 677
Joined: Sun Sep 13, 2015 6:16 pm

Re: another anniversary

Postby mariane » Mon Jan 22, 2018 11:59 pm

Congrats! Many, many more anniversaries! Go for gold, Ron! 30 more to go :)
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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