I know there are so many out there with husbands and loved ones hoping to find some feedback for cures or just more quality time. In the last 19 months life has been like a roller coaster ride. Ups and downs (a lot of down) with twists and turns along the way. My DH was diagnosed in June 2016 (all info below) While he was in his first rounds of Chemo i was diagnosed with Breast Cancer. This is something I don't talk about much because mine was in the early stage and after surgery and 6 weeks of Radiation mine was over. I was lucky enough not to need Chemo but I sat with my husband through 6 months of treatment. It was tough sitting in a Chemo room with everyone, knowing it could have been me and how blessed I felt. I will be going for my 1 year follow up soon hoping I get a good outcome but knowing even if I do my husband will not. Cancer may be over for me but my fight still goes on. Mark (DH) still puts up a good fight but I see the tired look on his face. He's tried to stop all Meds but as soon as treatment stops his CEA starts going back up. I know the CEA markers are different with everyone but it seems to be consistent with him when CEA goes up his Cancer is spreading again. His doctor wants him to go back on the Chemo infusion again but he said he doesn't want to do that again. So for now he is only on the Xeloda 2weeks on and 1 week off until we find a better direction. His Onc is looking into Clinical Trials but with the genetic test they've done they are saying most won't work on him.
If anyone has positive outcomes on trials with the same direction of Cancer as DH, I would love some input. I am hoping his Doctor comes up with something but all we can do is hope and pray that something comes along.