Back in the fight

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WarriorSpouse
Posts: 160
Joined: Tue Aug 16, 2016 9:02 pm

Re: Back in the fight

Postby WarriorSpouse » Tue Jan 23, 2018 1:18 pm

Keep fighting what is right in front of you. Do not take on more than the data and doctors bring.

Your fight is what is right in front of you from day to day. Good luck in the journey forward... Win the day, and the weeks will add up to more months and years ahead.

We know it is not an easy task, but we are with you!
WS
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.

"...Perseverance is not a long race; it is many short races one after the other."
-Walter Elliot

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Back in the fight

Postby fumaros » Tue Jan 23, 2018 1:44 pm

Stay strong and hopeful. I pray it is benign.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Caat55
Posts: 545
Joined: Sat Dec 23, 2017 6:01 pm

Re: Back in the fight

Postby Caat55 » Tue Jan 23, 2018 9:23 pm

I can't imagine the roller coaster ride you are on. Positive thoughts from California.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

macpudd
Posts: 79
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Wed Jan 24, 2018 8:24 am

Many thanks for the continued support. In neurosurgical unit for assessment since yesterday, my performance status is good, so they are letting me home and I will return on 5th February for surgical removal of 2.1cm X 1.7cm tumour on left temporal lobe on the 6th February. This will then be followed by sterotactic radiation therapy and possibly chemo depending on pathology report. Much happier now to have a plan in place. Thoughts with everyone else supporting loved ones or going through this themselves.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth some white matter damage

Lee
Posts: 5741
Joined: Sun Apr 16, 2006 4:09 pm

Re: Back in the fight

Postby Lee » Wed Jan 24, 2018 2:32 pm

So very sorry that you have to fight this battle again.

Good luck with your upcoming surgery. You will be in my thoughts and prayers for a successful surgery,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

macpudd
Posts: 79
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Wed Jan 24, 2018 3:04 pm

Roller coaster indeed, theatre slot now available tomorrow afternoon so having surgery then instead of 6th February. Glad to be getting it done sooner instead of a two week wait.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth some white matter damage

User avatar
susie0915
Posts: 872
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Back in the fight

Postby susie0915 » Wed Jan 24, 2018 3:25 pm

Praying for a successful surgery. Keep us updated
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change
11/18 CEA .6

User avatar
Atoq
Posts: 325
Joined: Wed Oct 25, 2017 9:31 am

Re: Back in the fight

Postby Atoq » Wed Jan 24, 2018 3:38 pm

Good luck with the surgery! Keep us updated.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6
19.11.18 clear coloscopy

Eleda
Posts: 197
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Back in the fight

Postby Eleda » Wed Jan 24, 2018 4:00 pm

Sorry so see u back in the ring again MAC
But I'd imagine the team in Dublin are prob the best in the country so ur in good hands.
Fingers crossed its benign.
Positive vibes all the way to u neighbor
Think of u
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

macpudd
Posts: 79
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Wed Jan 24, 2018 5:29 pm

Just settling down for the night now will try and getssome sleep, family just gone. I am so lucky to have so much virtual and in person support, will update here when I can. Good wishes to everyone else dealing with bad health.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor growth some white matter damage

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Back in the fight

Postby Robino1 » Wed Jan 24, 2018 6:32 pm

Wishing you the best of luck tomorrow. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Lee
Posts: 5741
Joined: Sun Apr 16, 2006 4:09 pm

Re: Back in the fight

Postby Lee » Wed Jan 24, 2018 6:42 pm

susie0915 wrote:Praying for a successful surgery. Keep us updated


Ditto, prayers for a very successful surgery.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

menreeq
Posts: 66
Joined: Fri Jun 30, 2017 10:26 am

Re: Back in the fight

Postby menreeq » Thu Jan 25, 2018 2:52 am

Wishing you a successful surgery and quick recovery! May you be on the road back to NEDville soon.
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41, mom to 5 & 2yo girls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17), 0.8 (2/28/18)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics counseling negative for mutations, 4 VUS
Xeloda monotherapy 8/13/17-1/22/18
PET/CT 3/21/18 NED

Eleda
Posts: 197
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Back in the fight

Postby Eleda » Thu Jan 25, 2018 4:00 am

Good luck today Mac
Hope all go's to planed
:) :) :) :)
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

User avatar
Sophy
Posts: 250
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: Back in the fight

Postby Sophy » Fri Jan 26, 2018 4:45 am

Hoping all goes well for your surgery and recovery.
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
Oct 2018 CT shows still NED
Continuing ADAPT


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