Back in the fight

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macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Fri Jan 26, 2018 6:31 pm

Surgery done yesterday, doc said she got 70/80% percent of tumour out. Head feels pressure, especially when I cough, or have flatulence. On oxycontin and increased steroids to reduce inflammation. For mri and she said I will be seen by radio oncology consultant to kill rest of tumour still on temporal lobe. Left ear deaf and feeling very tired. Thanks for all support
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Back in the fight

Postby Robino1 » Fri Jan 26, 2018 6:36 pm

Prayers for a smooth recovery.

Do they think the deafness is permanent or temporary?
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Back in the fight

Postby TXLiz » Fri Jan 26, 2018 6:46 pm

Keep fighting it! Glad surgery went well.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Back in the fight

Postby Eleda » Mon Jan 29, 2018 4:03 am

Hope all is going well Mac
In my thoughts
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Wed Jan 31, 2018 12:26 am

Well details becoming clearer now. My brain tumour is not a colon met but a primary glibistoma multiforme grade 4. It's not curable but I will be having radiation and chemotherapy and the great doc treating me say I may last 12 to 36 months. I am 52 years old, have my beautiful wife and four wonderful adult kids and one 3 year old grand child, he is such a happy curious funny loving child. Thanks for all the support, there are so many special people on this forum, it is a privilege to be part of it. Hope your treatment goes well Adele.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

Re: Back in the fight

Postby AussieAssCancer » Wed Jan 31, 2018 2:52 am

Very sorry to hear mate. One of my friends is a few months ahead of you and if it’s any consolation he said the chemo is very tolerable.

Rest up, heal, and get stuck into zapping/poisoning the bastard!

Geoff
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Wed Jan 31, 2018 3:10 am

AussieAssCancer wrote:Very sorry to hear mate. One of my friends is a few months ahead of you and if it’s any consolation he said the chemo is very tolerable.

Rest up, heal, and get stuck into zapping/poisoning the bastard!

Geoff

Thanks Geoff,
Hope things go as well as possible for your mate.
Our son lived in Melbourne for a few years and we spent 3 weeks there in 2013, we were really delighted the way our sons were looked after by your country men and women.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Back in the fight

Postby Eleda » Wed Jan 31, 2018 9:26 am

Hi Mac
Well I wasn't expecting that
This is shit news
Really shit!!!!!!!!!!!!!!!!! So much for the luck of the Irish
My Celtic friend
Stay strong and hang in there as best u can and make the most of ur time...
Buy the shoes
Eat the cake
Take the trip................
In my thoughts
Adele......
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

User avatar
susie0915
Posts: 865
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Back in the fight

Postby susie0915 » Wed Jan 31, 2018 10:09 am

So sorry to hear this. Your attitude is amazing and will be sure to help you in this new fight. I will be praying for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Back in the fight

Postby orlar » Wed Jan 31, 2018 2:18 pm

Heal fast from surgery and make each day your own. Prayers out to you and yours.

macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: Back in the fight

Postby macpudd » Thu Feb 01, 2018 2:06 am

People in this forum are just so good, such lovely supportive messages despite their own problems.
Ha Adele you have a real celtic tone in your way of talking. I hope things are working out for you. I was in the Richmond Unit in Beaumont hospital for 1 week, there was 22 patients all with neurological problems and some like me with malignant tumours. It was very moving meeting a lot of the patients. Some were very young and others were middle aged. There were several emigrants, Russian, Lithuanian and Estonian. Also a good number of the staff were not Irish, there were Asian, Indian, Italian, Philipino and South African. All these cultures, and different fates were amazing in that everyone was just so nice to each other. I know I am rambling on but meeting all these people made me feel so good. There is so much distressing things on the news programmes all over the world, warfare and crime, it is just so reassuring when you meet and talk with kind individuals who are good to people no matter what.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Back in the fight

Postby Eleda » Thu Feb 01, 2018 4:11 am

Morning mac
Not sure if this is any help but just read it this morning.
Yea I have the typically irish sarcastic whit lol
It gets me through the tough times lol


http://dailym.ai/2BKkkwi
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Back in the fight

Postby Caat55 » Thu Feb 01, 2018 7:11 am

Thinking about you this a.m. stay strong, cancer sucks!
You attitude is wonderful.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Back in the fight

Postby Shana » Fri Feb 02, 2018 11:40 pm

Cancer sucks, your attitude and spirit are inspiring!

Wishing you all the best as you figh this new battle. You're righ,t the people on this forum are the absolute best support. I only wish we could all beat this disease and just talk about our families and great vacations!

Take care, you're in my thoughts and prayers!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

User avatar
bitchslapped
Posts: 1502
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Back in the fight

Postby bitchslapped » Sat Feb 03, 2018 10:11 pm

That's a bum rap mac. I agree w/others that you have a great attitude...a survivor's attitude. Let that positivity carry you & as a member here on this forum, you know we look to the next new drug, treatments, clinical trials etc. Life just keeps throwing those punches.

Best Wishes in your recovery from surgery
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia


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