Hey mac...I'll never forget my DH's onc saying "the issue is in the tissue". I sure hope the further tests are helpful in identifying what's most likely going on upstairs. Just seems even if benign it will need to be addressed as causing scary symptoms. Does sound like they are assembling a good team for you. Wish I could offer more in the way of information.
Keep us updated.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia