I am level 4/5 pain. Miserable level 8. Pain Controllable with Oscillocossinum and Motrin 600. I feel like someone is pulling on my bladder strings. Maybe my bladder is falling out of my vagina, or maybe my vagina is falling out. The pain is above my pubic bone and where the pee comes out. Maybe its in my vagina too. I am so sick of talking about my girl parts and my rear passage!! So, Its painful to pee, not burning, but pain in this place like its in the middle of nowhere. I seriously cannot point to a body part on the diagram, the place is nowhere. There is pain pressure when I stand up. I feel like I'm peeing on myself. Walking causes this pain. Sitting up causes this pain. Lying flat causes this pain. I feel like I need to tighten the pelvic muscles to be able to stop pee when I feel like I am going to pee on myself. My best position is in a nest of pillows slightly tilted to the side with a pillow under half my butt. This started the last three days of radiation, and has gotten worse with a fever up to 100 for two evenings, and it has since gotten slightly better but not completely tolerable.
I'm on my own here.
I totally relate to your pain and exhaustion about talking about everything down south. I was going between Tylenol and ibuprofen for the last week of radiation and really the 3 weeks after. I found the only place I could sleep was in the bathtub, just added water as it cooled down. My friend gave me a cannibus cream with arnica, menthol which helped. I start wearing my husbands boxers shorts. Also found a cream called calmoseptine, zinc and menthol, which I rubbed on myweeping skin. I got a cushion used in wheelchair which allowed my to drive, sit for meal. I am sharing this not for sympathy but in the event something will stick for you. There is just so much they don't tell you or you can't prepare for.
There is some great pelvic floor exercises at core exercise solutions.com.
I finished radiation December 8th, can now wear boxers right side out guess seams don't bother me any more but lasted ten minutes in pants. Thank goodness for long skirts and Ugg boots.
You are in my thoughts!!
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy