etaylor22 wrote:Just an update - refused additional chemo. I'm good. I'm not in for any more damage. I actually felt fine before going in - aside from the complete blockage. My everything was normal - aside from the tumor. My cea is now .78 and I'm done. No more, and I'm taking my chances. I'm not saying thats right for everyone. I'm glad that many of you go with the plan, and fare well. That wouldn't be me. I still have residual pain in my feet/toes, my brain is completely flawed, my hip / pelvic / SI joint is screwed, and yet I "tolerated it well". BS. This f'd my life over and now I am in the body of a 70 year old. I am now my mother, but worse. F this. This sucks, and this "treatment" shouldn't be called that. Its a death sentence. Quit sugar coating it. I sent my kids off for the first day of school today. I walked them. In the rain. No umbrella. I'm good with that. Want to take it away - I'm out. I'm good for now. I'm done with treatments. I'll watch the follow ups, but otherwise, I'm done.
etaylor22 wrote:This is more of a rant than a question...I'm coloretal cancer stage IIIb. Initial emergency colostomy, then went through 5 weeks of pelvic radiation with xeloda. The very last week of Radiation I thought I had a yeast infection, so I got the antibiotic. Then it started to feel like a UTI. I asked for antibiotics, but they insisted on a urinalysis. The sample after 48 hours showed no growth so the Doc comes back with "No Infection shown. I hope you are feeling better".
I am level 4/5 pain. Miserable level 8. Pain Controllable with Oscillocossinum and Motrin 600. I feel like someone is pulling on my bladder strings. Maybe my bladder is falling out of my vagina, or maybe my vagina is falling out. The pain is above my pubic bone and where the pee comes out. Maybe its in my vagina too. I am so sick of talking about my girl parts and my rear passage!! So, Its painful to pee, not burning, but pain in this place like its in the middle of nowhere. I seriously cannot point to a body part on the diagram, the place is nowhere. There is pain pressure when I stand up. I feel like I'm peeing on myself. Walking causes this pain. Sitting up causes this pain. Lying flat causes this pain. I feel like I need to tighten the pelvic muscles to be able to stop pee when I feel like I am going to pee on myself. My best position is in a nest of pillows slightly tilted to the side with a pillow under half my butt. This started the last three days of radiation, and has gotten worse with a fever up to 100 for two evenings, and it has since gotten slightly better but not completely tolerable.
I'm on my own here. The first day of radiation, I asked the Radiation Oncologist about vaginal stenosis. He said it rarely happens. Pffft. So now this pain and his reception...I asked about this pain three days to the end of Radiation, and he blew it off. I was nearly in the floor in pain, crying like a blubbering fool. Then went to the Hematology Onc who came back with the hope you are feeling better statement.
I'm ready to go to the Chinese medicine doc for help. I am on an Island.
Users browsing this forum: No registered users and 40 guests