Tribute to my dear friend Anne - aka BeansMama

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WriterGirl1969
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Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Sun Jan 14, 2018 10:50 pm

I can't believe it's true, and I can hardly see to write this to you all. My heart is breaking. We've lost Anne. Our dear, sweet Beansmama.

As most of you know, she fought a long battle with cancer, which ended in November when Larry was removed and found to be already dead. She was officially cancer-free. So in my opinion, she DID beat this damn disease.

Recovery started out difficult, with quite a long stay in the ICU, but she went home and was recovering quite well. It was ultimately blood clots in the liver that took her from us, and it was very unexpected for everyone. Services will be held on Jan. 21 for her. I don't have details yet, but if I receive them and the family's okay, I will pass them on to you.

Like many of you, Anne found me when I was new here, picked me out of so many other posts and voices, and she was there to help me to face my journey. I never met her face-to-face, but she will always be a sister in arms to me, a fellow warrior who faced the fight with more bravery and heart than anyone I could understand. You may have left before me, but I will see you again some day. In the meantime, I will do my best to keep spreading the light that you never let die.

With all my heart,
Your Sister-In-Arms Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Robino1
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Facebook Username: Robin.lawthers
Location: Florida

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Robino1 » Sun Jan 14, 2018 10:58 pm

I've been thinking of you since I heard the news. I'm so incredibly sorry for the loss of your dear friend. Even though we don't meet people face to face, we do have intensely personal connections with special people that we 'meet' online.

A beautiful tribute to a phenomenal person.

{{{ hugs}}}
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Sun Jan 14, 2018 11:15 pm

Robino1 wrote:I've been thinking of you since I heard the news. I'm so incredibly sorry for the loss of your dear friend. Even though we don't meet people face to face, we do have intensely personal connections with special people that we 'meet' online.

A beautiful tribute to a phenomenal person.

{{{ hugs}}}


Thank you. <:- )
I tell people it's like being in a war. Soldiers who fight and bleed together find a bond that is sometimes stronger than we can understand. Anne was instrumental in turning my perspective around when I was first diagnosed - a fact I reminded her of as often as I could. She'll certainly be missed.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Sun Jan 14, 2018 11:33 pm

This is an excerpt from her last text to me...

"Please, feel free to share my story - if it gives just one person hope that you can overcome what seems impossible it is worth it."

That's who she was.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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henry123
Posts: 218
Joined: Sun Oct 08, 2017 3:25 am

Re: Tribute to my dear friend Anne - aka BeansMama

Postby henry123 » Sun Jan 14, 2018 11:50 pm

So sorry to hear about BeansMama.
She will be missed by all of us.
Deepest condolences to her friends and family.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
1/20 NED Opdivo stop
8/23 1.0 All ok

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Maggie Nell
Posts: 1150
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Maggie Nell » Mon Jan 15, 2018 12:37 am

I have had this song earworming me since this morning when I read that Beansmama is
gone from our sight.

https://www.youtube.com/watch?v=WzB1EdVI8C4

Free (remix) Nas and Emilie - Rudimental

Whoa, c'est la vie
Maybe something's wrong with me
Whoa, at least I am free, oh, oh, I am free
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

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susie0915
Posts: 945
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Tribute to my dear friend Anne - aka BeansMama

Postby susie0915 » Mon Jan 15, 2018 8:38 am

I am so sorry you lost your good friend. I read her story when I joined and was always so impressed with her strength during the issues she faced. I have been thinking of her since I read the news. Prayers to her family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Tribute to my dear friend Anne - aka BeansMama

Postby fumaros » Mon Jan 15, 2018 10:15 am

Oh my goodness. My heart is breaking. That is the last and worst bit of news I was expecting to hear. BeansMama was a true fighter, a hero even. Right till the end she was an inspiration on what it means to keep trying and pushing past the odds. May her soul rest in everlasting peace.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby TXLiz » Mon Jan 15, 2018 11:41 am

So sad to hear this. She was very kind to me, always helpful.

Rest well, Beans Mama. May God bring your family comfort and peace.

:cry:
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

yiayia
Posts: 32
Joined: Thu Feb 19, 2015 4:45 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby yiayia » Mon Jan 15, 2018 2:27 pm

My heart is broken. My deepest condolences for your terrible loss. BeansMama was unfailingly positive and so encouraging to everyone no matter where she was in her own journey. A true gift to me and all of us here. I didn't post much, but always read her threads because they never failed to lift me up just when I needed it. What a giving, loving, unselfish soul. Sometimes in our lives we are gifted, however briefly,with the presence of an angel. I will honor Anne by never forgetting the impact she has had on my life; hope, optimism, positivity, love, and most of all, living to her fullest. Her life changed mine. Godspeed, beautiful Angel.
Caregiver to wife
Dx CC Stage 2B Labor Day 2014
T3N0M0 Stage 2B Resection 9/14
XELODA 10/15-2/15 - F/U Colonoscopy 2/15: Clear
Resume Xeloda 3/15, 3 more cycles.
Endoscopy 7/15: Clear. PET Scan 8/15: CLEAR! NED! Some concern @CEA Level
10/15: CEA rising. 11/15 CT Clear. CEA still rising.
2/16: 1 yr colonoscopy: Clear. CEA still rising.
3/16:CT shows hydronephrosis, 3/16: PET lights up - Recurrence
4/16: Nephrostomy, begin Folfox

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Lee » Mon Jan 15, 2018 7:26 pm

I will miss her. I really thought she made it through the worst. I will be thinking of her on the 21st.

I feel so sorry for her kids (I believe she had 2). I hope they grow up and know what a wonderful person she was.

Rest in peace, Anne. Heaven just got a wonderful, beautiful soul.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Lovenothate
Posts: 38
Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Lovenothate » Mon Jan 15, 2018 7:43 pm

I hate cancer... Beansmama I’m praying for your family and Bean... you will be truly missed
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Colostomy
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Shana » Mon Jan 15, 2018 8:04 pm

Tracy, I'm so terribly sorry for the loss of your friend Anne. She was a good friend to so many people on here. She had a wicked sense of humor and such amazing spirit.

Her story was inspiring, she was a wonderful mother. My thoughts and prayers are with her family and friends. I'm so sad to hear this news. May she forever rest in peace and may we find a cure for this damn disease! :(
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Tribute to my dear friend Anne - aka BeansMama

Postby orlar » Mon Jan 15, 2018 8:32 pm

My heart dropped to the floor a few minutes ago when I read about Anne. Although I never made personal contact, I read her posts and admired her will and ability to stay positive. I can only hope all of us face our trials half as well as she did. Prayers to the kids and the rest of the family and friends.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby SweetC80 » Tue Jan 16, 2018 8:54 am

It breaks my heart to hear of her passing. My thoughts are with you and your dear friend.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully


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