Tribute to my dear friend Anne - aka BeansMama

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plastikos
Posts: 309
Joined: Wed Jan 14, 2015 6:09 am

Re: Tribute to my dear friend Anne - aka BeansMama

Postby plastikos » Tue Jan 16, 2018 9:25 am

So sorry to hear this. I always followed her posts. Saying a prayer for her.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED

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mypinkheaven
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Facebook Username: Sally Cunningham
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Re: Tribute to my dear friend Anne - aka BeansMama

Postby mypinkheaven » Tue Jan 16, 2018 1:26 pm

I really thought that Annie would grow to be an old lady and see her Bean get married and have grandchildren. It's so sad that that was not to be. But Annie left a legacy of love that I hope will sustain her family and friends. Best wishes to her sweet daughter.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

mariane
Posts: 624
Joined: Sun Sep 13, 2015 6:16 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby mariane » Tue Jan 16, 2018 2:21 pm

I am very sorry to read the post about Anne's passage.

We all here loved her, cheered for her.

Her good heart brought some warmth to our group.

Prayers, dear Anne.
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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juliej
Posts: 2859
Joined: Thu Aug 05, 2010 12:59 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby juliej » Tue Jan 16, 2018 6:28 pm

We all cheered BeansMama on in her fight, amazed at her passion and strength. The world is a bit darker without her light today. We were blessed to know her, but not for nearly long enough. My thoughts and condolences to her family.

Stand strong. F*ck cancer.
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Tue Jan 16, 2018 8:52 pm

Maggie Nell wrote:I have had this song earworming me since this morning when I read that Beansmama is
gone from our sight.

https://www.youtube.com/watch?v=WzB1EdVI8C4

Free (remix) Nas and Emilie - Rudimental

Whoa, c'est la vie
Maybe something's wrong with me
Whoa, at least I am free, oh, oh, I am free


So true. And she is free. I'm both happy and sad that she got to hear the word "CURED" even if it was brief.
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Tue Jan 16, 2018 9:19 pm

Thank you everyone, for all your thoughts.

Henry123, Susie0915, TXLiz, Lovenothate, orlar, SweetC80, plastikos (hopefully I’m not forgetting anyone, but if I do please forgive me – I read each note and all of them made a difference to me).

A few quotes and words…

fumaros wrote: That is the last and worst bit of news I was expecting to hear.

I feel the same. I was worried during surgery and while she was in recovery, but thought she was past the danger. When I found out, at first I thought I was mistaken.

Lee wrote: I will miss her. I really thought she made it through the worst. I will be thinking of her on the 21st. I feel so sorry for her kids (I believe she had 2). I hope they grow up and know what a wonderful person she was.

Lee, she had one daughter that was hers, and one that was her husband’s from a prior marriage. I’m sure both of them are feeling the impact, but agree with you in the hope that they grow up knowing how special she was.

yiayia wrote:Her life changed mine.

I know that would mean the world to her. That’s what it was all about for her. She changed my life too.

Shana wrote:I'm so terribly sorry for the loss of your friend Anne. She was a good friend to so many people on here. She had a wicked sense of humor and such amazing spirit.

Thanks Shana. She did have an awesome sense of humor. :) I’m so glad I got to have her as a friend.

mypinkheaven wrote:Annie left a legacy of love that I hope will sustain her family and friends.

Indeed she did. And even though she won’t get to be there when Bean gets married or has children of her own, I just know that the legacy you speak of is true and will mean that someday Annie will get to be reunited with her and meet any beautiful new beans.

mariane wrote:We all here loved her, cheered for her.

We sure did. And she knew it, too. She told me that all the time. ::hugs::

juliej wrote:The world is a bit darker without her light today. We were blessed to know her, but not for nearly long enough.

Well said, Julie. Well said. We will stand strong. We’ll fight. We’ll make Annie proud.

I know that she truly cared about all of you, and she would be so honored to know what an impact she made on so many lives.
Love, Hugs and Blessings to all of you.
--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

Re: Tribute to my dear friend Anne - aka BeansMama

Postby AussieAssCancer » Wed Jan 17, 2018 4:52 am

So crappy in circumstances where she had Overcome so much, and not just shitty cancer related, life in general, and she still had sass.

Root beer is hard to find here but I’ll try and hunt one out and give her a toast
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

[Ana & Alex]
Posts: 96
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Tribute to my dear friend Anne - aka BeansMama

Postby [Ana & Alex] » Wed Jan 17, 2018 10:15 am

Im so really sorry :(

I was acompannying her journey and was so happy for her results with Keytruda and for Larry's eviction surgery.

I really though she was out of the woods.
I'm really sad for her family, to experience such a loss, when things where finally getting better...

I really don't understand life sometimes.

Sending my best regards and condolences to her friends and family... :(
Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

DarknessEmbraced
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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Tribute to my dear friend Anne - aka BeansMama

Postby DarknessEmbraced » Wed Jan 17, 2018 11:10 am

How very sad! :( Anne always was supportive of me and always tried to answer my questions. I'm so very sorry for your loss and the loss of her as a member of this group!*hugs* May she rest easy. My deepest condolences to her friends and family!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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ocstacy
Posts: 263
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Facebook Username: stacy

Re: Tribute to my dear friend Anne - aka BeansMama

Postby ocstacy » Thu Jan 18, 2018 4:22 am

I feel like I know her, but can't see it. I just remember her posting something about naming her tumor Larry. She was close to my age with children. I can't even imagine. Someone suggested to "Don't ask, but do" when things like this happen. Something to think about. RIP sweet angel Cancer sure sucks. :(
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Tribute to my dear friend Anne - aka BeansMama

Postby KElizabeth » Thu Jan 18, 2018 4:44 pm

We'll miss you Anne but we can find solace in knowing how profoundly beautiful your next adventure is going to be. Safe travels friend.

May your joys be deep as the ocean
Your troubles as light as its foam
And may you find sweet peace my friend
Wherever you may roam

~ unknown
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby macpudd » Fri Jan 19, 2018 4:53 pm

Am so sad to hear of BeansMama passing. She was one of those rare people who could make postings on a forum convey the true warmth of her personality. I will miss her but take inspiration from such a strong person as I enter a new phase of my own fight.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tribute to my dear friend Anne - aka BeansMama

Postby WriterGirl1969 » Sun Jan 21, 2018 7:45 pm

Thanks again everyone - I wanted to post a quick update as today were the services for our Beansmama. I found out a few days ago that they were actually having them fairly close to where I live (couple hours drive), and while I didn't want to infringe on the family I felt really strongly that I wanted to at least show up and let them know how much she was loved by all of us here on ColonTalk.

I was able to share this with her family, and also with the bean herself. I let her know that there were lots and lots of people all over the world that she'd never met, but who loved her mom very much and would be praying for her. I told her that if she ever needed *anything* to let me know and I would spread the word to all of you.

I'm happy to say that she was surrounded by lots of family (Anne's apparently from a fairly large family), mostly lots of aunts and cousins. In the time I got to speak with her she said that she knew there were lots of people thinking about her - probably more than she even knew (she's right there, I think). :mrgreen:

So while today was rightfully sad, it was also comforting to know that the bean was well looked after. I gave them hugs from all of us. Anne's sister Heather is trying to start some kind of local awareness group about Lynch syndrome in her area. I told her to keep me in the loop, as there were lots of folks here who are knowledgeable and could probably provide her with guidance or information. I have a feeling that our BeansMama will have a long legacy to follow.

With hugs and prayers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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CRguy
Posts: 9620
Joined: Sun Feb 10, 2008 6:00 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby CRguy » Sun Jan 21, 2018 9:28 pm

Tracy, I believe it is very powerful that you have been able to connect IRL with Anne's family.

Yes, she had many friends here and we would and will do anything, to support and raise awareness so her "bean" will never have to go through any of this herself. Let Heather know if we can help in any way to get her online here and connected... we will !

Love Peace and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 5681
Joined: Sun Apr 16, 2006 4:09 pm

Re: Tribute to my dear friend Anne - aka BeansMama

Postby Lee » Mon Jan 22, 2018 4:40 pm

Thank you Tracy for that beautiful update. I was so happy to read that you were able to meet Bean. Something tells me you probably made a major impact in her life going forward know who her mother was. That is precious.

Yes, if there is anything we can do for Bean or her family, please let us know.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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