Postby AppleTree » Mon Jan 15, 2018 11:34 am
Thank you for your responses. My sister was very worried and we went to Beth Isreal Deaconess ER last night...for hours. My potassium was very low so they gave me the horse pills. Good news is my platlets went from below 50 to 80 in 2 days! They did an adomine to pelvis CT scan to see if any absess, etc. Night radiology read the report as nothing significant. Day radiology called this morning and told me to get the disc to my oncologist for comparison as there is a small cyst in the liver. I had CT scans in November, July and Feb so they definitely have scans to compare.
I have a power port and they were really happy I had the wallet card with flushing instructions, etc. I guess different ports are different! I also had a list of my current meds with me. Anything to help them out.
They said what I really needed was a barium enema and they do not do that in ER. So, working on that, but my oncologist office is closed today and she is out until the end of the week.
I do not consider it an emergency because I have no pain, but my sister is very worried about infection. Last infection ended up with me being weeks in the hospital, so I understand! The Neulasta shot keeps my white blood cell count high. That is a good thing despite the killer headache I always get from that.
So, all things considered, ER provides some peace of mind even if they do take forever. I get It! Certainly if car accident people, etc. would take priority and rightly so.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital
2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!