Beansmama is gone.

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Beansmama is gone.

Postby WriterGirl1969 » Tue Jan 16, 2018 9:27 pm

MissMolly wrote:Hearing this news was enough to suck the oxygen right out of me.


I know Karen, me too. Literally.

MissMolly wrote:BeansMama gave everything she had to overcoming her cancer. She held back nothing. I remember her last posting before Christmas, where she was hospitalized with pleurisy and substantial lung fluid that had been tapped.


Yes, it was a bumpy ride, but I really thought she'd gotten through the worst. I know that she knew the surgery and recovery would be risky, but like you said, she held nothing back. She'd do anything to overcome. She was a warrior through-and-through, and like you said, her leaving is a loss to the community here. I rest in the fact that she had a strong faith and that she is in God's arms. Even just the surgery was a huge thing for the doctors and hospital there in terms of future treatment for liver tumors near the artery, and of course for Lynch Syndrome testing and treatment. She left a legacy that will go well beyond her. I hope, somewhere, she knows that and feels all the love we have for her.

Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Beansmama is gone.

Postby WriterGirl1969 » Tue Jan 16, 2018 9:31 pm

rockhound wrote:Seeing events like this really make it hard to move forward mentally- wow, this sucks. I really enjoyed following her posts and all of the joy/inspiration she gave to others here. Truly sorry for her little one..Cancer sucks.


Rockhound, I don't know for sure, but I think maybe if she were still here she'd remind you that she *did* beat it. She was officially cancer-free after surgery. Yes, the surgery was rough and there were unfortunate complications, but the tumor was already dead when they removed it, so that gives a lot of hope with regard to treatment, even at stage IV. There are a lot of "what ifs" and "if onlys," but she never looked back. Keep the faith. Never stop fighting.

Hugs,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Beansmama is gone.

Postby Robino1 » Tue Jan 16, 2018 10:07 pm

The fact that the tumor was dead is what gives me hope. She is still inspiring, even now.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

rockhound
Posts: 109
Joined: Fri Jul 14, 2017 5:00 pm

Re: Beansmama is gone.

Postby rockhound » Tue Jan 16, 2018 10:33 pm

WriterGirl1969 wrote:
rockhound wrote:Seeing events like this really make it hard to move forward mentally- wow, this sucks. I really enjoyed following her posts and all of the joy/inspiration she gave to others here. Truly sorry for her little one..Cancer sucks.


Rockhound, I don't know for sure, but I think maybe if she were still here she'd remind you that she *did* beat it. She was officially cancer-free after surgery. Yes, the surgery was rough and there were unfortunate complications, but the tumor was already dead when they removed it, so that gives a lot of hope with regard to treatment, even at stage IV. There are a lot of "what ifs" and "if onlys," but she never looked back. Keep the faith. Never stop fighting.

Hugs,
Tracy


Yes that is the best thing- that she did beat it most likely! Having a bit of post-holiday letdown on my end, even considering I feel like I'm in a relatively good situation all things considered. Thanks!
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
1/18 - 5mm polyp removed during colonoscopy
5/18 - CT, NED

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WriterGirl1969
Posts: 493
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Beansmama is gone.

Postby WriterGirl1969 » Tue Jan 16, 2018 10:46 pm

rockhound wrote:Yes that is the best thing- that she did beat it most likely! Having a bit of post-holiday letdown on my end, even considering I feel like I'm in a relatively good situation all things considered. Thanks!


That's what this group is all about. Understanding each other when we feel those down times, and reminding each other and passing along words of hope. Beansmama went through a lot, but ultimately the drugs targeted for lynch syndrome positive patients (like her) did kill the tumor, which is an incredibly positive thing for someone who went for so long with no positive results. It says a lot about the effectiveness of targeted therapies.

As her sister reminded me, most of the people in her family have been found to be lynch positive. Maybe even the Bean will be found to be. So by going through all of this, Beansmama might have saved all of them, including her daughter, and maybe some of the folks on this board as well.

I'm going to spread that news as far and wide as I can for her sake. :)

Hugs,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

DarknessEmbraced
Posts: 3155
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Beansmama is gone.

Postby DarknessEmbraced » Wed Jan 17, 2018 11:12 am

How very sad! :( Anne always was supportive of me and always tried to answer my questions. I'm so very sorry for your loss and the loss of her as a member of this group!*hugs* May she rest easy. My deepest condolences to her friends and family!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

benben
Posts: 303
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Beansmama is gone.

Postby benben » Wed Jan 17, 2018 6:37 pm

This news induces a heavy heart!

Prayers for Bean, Beansmama, family, and of course - friends.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, CEA 4.6 :(
8/30 CEA 2.6
10/5 CEA 1.5
11/8 PORT OUT!

kiwiinoz
Posts: 1105
Joined: Thu Jan 03, 2013 11:44 pm

Re: Beansmama is gone.

Postby kiwiinoz » Wed Jan 17, 2018 7:25 pm

I was very saddened to hear this. She fought a good fight, and seems like she beat it to be blindsided by complications.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

henry123
Posts: 138
Joined: Sun Oct 08, 2017 3:25 am

Re: Beansmama is gone.

Postby henry123 » Thu Jun 07, 2018 6:12 am

My medical oncologist refused to allow a root canal saying he cannot risk any sort of sudden shock to immune system while I am on a immunotherapy regime.
I discussed BeansMama and he said that surgery or any other sudden change can be fatal for patient on drugs like Opdivo or Keytruda since they are changing immune system rather than just strengthening it. Nobody knows how immune system will respond to any such perceived threat.
Don't know if it has anything to do with BeansMama , who is still in our thoughts.
People on immunotherapy, please be guard.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot


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