I was diagnosed with Stage 4 CRC June 2016, CEA 2,750. Lymph, bile duct, liver and lungs..BAD JuJu to say the least. I'm a 42 yr old mom with an amazing 3 year old.
I did well with FOLFOX+Avastin for 11 months-signs of Oxaliplatin resistance.
Irinotecan+Cetuximab 6 months, became KRAS Mut. Off Cetuximab back to Avastin..CEA went from 0.3 to 9.7 within 8 weeks.
I have fought with my oncologist to let me try off label use of Maraviroc as monotherapy for 4 to 8 weeks then start chemo in combination. It's a little scary but in speaking with Niels Halama in Germany (the one who ran the Maracon trial) this is the protocol he used. I'm not at the end of the line with treatment options, I refuse to get to that point. Failing is NOT an option for me or the rest of you out there! I'm just curious if anyone has tried Maraviroc and if so, what was your result?
Thought for the day: Hope, Faith, Love and the strongest of all these is LOVE.
Fear and failure are not an option