The Colon Club

Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City Thank You

Hi and welcome, so sorry for you diagnoses.

I am not familiar with Goblet Cell Carcinoid. Best advice I can give you, get second opinions at major cancer hospitals or major cancer treatment centers.

Good luck,

Lee

I've never heard of it before either. Will take a quick peek around for papers.

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City Thank You

I've had nothing but good experiences at KU med cancer center... major NCI center (http://www.kucancercenter.org/). Check them out and if there is nobody there with that has experience with this kind of cancer, you could go get second opinion elsewhere at a bigger center (e.g., Mayo, Anderson, etc.).

I'm sorry for your diagnosis!*hugs*

I have a bit of trouble navigating the site yet -- thank you for your responses and support! I'm admittedly feeling a bit discouraged -- it feels better to have some sort of treatment plan but apparently that's not quite possible. I know all the best places for NETs; would folks mind sharing referrals for "best" colon cancer docs/facilities? Maybe I can find a magic in-between

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City Thank You

I am having surgery on my goblet cell carcinoid this Friday. You are not alone