Goblet Cell Carcinoid

Please feel free to read, share your thoughts, your stories and connect with others!
Cobyjb
Posts: 2
Joined: Sat Jan 13, 2018 7:54 pm
Facebook Username: Coby Budridge

Goblet Cell Carcinoid

Postby Cobyjb » Sat Jan 13, 2018 9:34 pm

Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You

Lee
Posts: 5507
Joined: Sun Apr 16, 2006 4:09 pm

Re: Goblet Cell Carcinoid

Postby Lee » Sun Jan 14, 2018 6:58 pm

Hi and welcome, so sorry for you diagnoses.

I am not familiar with Goblet Cell Carcinoid. Best advice I can give you, get second opinions at major cancer hospitals or major cancer treatment centers.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

NHMike
Posts: 1107
Joined: Fri Jul 21, 2017 3:43 am

Re: Goblet Cell Carcinoid

Postby NHMike » Tue Jan 16, 2018 6:08 pm

I've never heard of it before either. Will take a quick peek around for papers.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

Basil
Posts: 239
Joined: Thu Mar 16, 2017 12:33 pm

Re: Goblet Cell Carcinoid

Postby Basil » Tue Jan 16, 2018 7:46 pm

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer S3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED

rockhound
Posts: 101
Joined: Fri Jul 14, 2017 5:00 pm

Re: Goblet Cell Carcinoid

Postby rockhound » Tue Jan 16, 2018 10:32 pm

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You


I've had nothing but good experiences at KU med cancer center... major NCI center (http://www.kucancercenter.org/). Check them out and if there is nobody there with that has experience with this kind of cancer, you could go get second opinion elsewhere at a bigger center (e.g., Mayo, Anderson, etc.).
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT
1/18 - 5mm polyp removed during colonoscopy

DarknessEmbraced
Posts: 2947
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Goblet Cell Carcinoid

Postby DarknessEmbraced » Wed Jan 17, 2018 11:25 am

I'm sorry for your diagnosis!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Cobyjb
Posts: 2
Joined: Sat Jan 13, 2018 7:54 pm
Facebook Username: Coby Budridge

Re: Goblet Cell Carcinoid

Postby Cobyjb » Thu Jan 25, 2018 3:39 pm

I have a bit of trouble navigating the site yet -- thank you for your responses and support! I'm admittedly feeling a bit discouraged -- it feels better to have some sort of treatment plan but apparently that's not quite possible. I know all the best places for NETs; would folks mind sharing referrals for "best" colon cancer docs/facilities? Maybe I can find a magic in-between :)

alfaboy21
Posts: 1
Joined: Mon Feb 19, 2018 10:46 pm
Facebook Username: Mike Fish

Re: Goblet Cell Carcinoid

Postby alfaboy21 » Mon Feb 19, 2018 10:57 pm

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You


I am having surgery on my goblet cell carcinoid this Friday. You are not alone


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: jsatx, Majestic-12 [Bot], margiej, NHMike, njf and 39 guests