Postby rockhound » Tue Jan 16, 2018 10:32 pm
Cobyjb wrote:Hi,
I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City
Thank You
I've had nothing but good experiences at KU med cancer center... major NCI center (
http://www.kucancercenter.org/). Check them out and if there is nobody there with that has experience with this kind of cancer, you could go get second opinion elsewhere at a bigger center (e.g., Mayo, Anderson, etc.).
45 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
5/18 - CT, NED
11/18 - CT, NED
5/19 - CT, NED..moving to yearly CT scans
5/20 - CT, NED
5/21 - CT, NED (4 yr. scan)