Goblet Cell Carcinoid

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Cobyjb
Posts: 2
Joined: Sat Jan 13, 2018 7:54 pm
Facebook Username: Coby Budridge

Goblet Cell Carcinoid

Postby Cobyjb » Sat Jan 13, 2018 9:34 pm

Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Goblet Cell Carcinoid

Postby Lee » Sun Jan 14, 2018 6:58 pm

Hi and welcome, so sorry for you diagnoses.

I am not familiar with Goblet Cell Carcinoid. Best advice I can give you, get second opinions at major cancer hospitals or major cancer treatment centers.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Goblet Cell Carcinoid

Postby NHMike » Tue Jan 16, 2018 6:08 pm

I've never heard of it before either. Will take a quick peek around for papers.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: Goblet Cell Carcinoid

Postby Basil » Tue Jan 16, 2018 7:46 pm

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)

rockhound
Posts: 113
Joined: Fri Jul 14, 2017 5:00 pm

Re: Goblet Cell Carcinoid

Postby rockhound » Tue Jan 16, 2018 10:32 pm

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You


I've had nothing but good experiences at KU med cancer center... major NCI center (http://www.kucancercenter.org/). Check them out and if there is nobody there with that has experience with this kind of cancer, you could go get second opinion elsewhere at a bigger center (e.g., Mayo, Anderson, etc.).
45 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
5/18 - CT, NED
11/18 - CT, NED
5/19 - CT, NED..moving to yearly CT scans
5/20 - CT, NED
5/21 - CT, NED (4 yr. scan)

DarknessEmbraced
Posts: 3815
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Goblet Cell Carcinoid

Postby DarknessEmbraced » Wed Jan 17, 2018 11:25 am

I'm sorry for your diagnosis!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Cobyjb
Posts: 2
Joined: Sat Jan 13, 2018 7:54 pm
Facebook Username: Coby Budridge

Re: Goblet Cell Carcinoid

Postby Cobyjb » Thu Jan 25, 2018 3:39 pm

I have a bit of trouble navigating the site yet -- thank you for your responses and support! I'm admittedly feeling a bit discouraged -- it feels better to have some sort of treatment plan but apparently that's not quite possible. I know all the best places for NETs; would folks mind sharing referrals for "best" colon cancer docs/facilities? Maybe I can find a magic in-between :)

alfaboy21
Posts: 1
Joined: Mon Feb 19, 2018 10:46 pm
Facebook Username: Mike Fish

Re: Goblet Cell Carcinoid

Postby alfaboy21 » Mon Feb 19, 2018 10:57 pm

Cobyjb wrote:Hi,

I'm new to the site and catching up with a lot of good information. Is anyone here currently Goblet Cell Carcinoid -- an aggressive form of cancer that "lies midway" between Neuroendocrine Tumors (NETs) and andenocarcinoid, or colon cancer. I saw 3 posts but from several yrs ago. There's no actual known protocol for it that I know of -- treatment is "patched together" from both protocols (colon and NETs). I'd so appreciate hearing any info anyone may have, or advice on specialist! Am in Kansas City :) Thank You


I am having surgery on my goblet cell carcinoid this Friday. You are not alone


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