Surgery scheduled, clinical study for Lifeseal, questions about recovery

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retiredteacher
Posts: 95
Joined: Sat Oct 21, 2017 1:34 pm

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Postby retiredteacher » Mon Mar 19, 2018 1:39 pm

I start Thursday as well!
RC, F, 63 at diagnosis, Sept. 2017
Adenocarcinoma 6.3 - 7 cm tumor (PET)
Initial path, MSS, G2,
Stage est. T3N0M0 PET only
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018
MRI Feb. 2018 for Presurgical staging yT2 N0 12 cm from AV 3 cm in size
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm in size
CAPEOX starting March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues.

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Postby Caat55 » Mon Mar 19, 2018 5:05 pm

retiredteacher wrote:I start Thursday as well!

I got to enjoy Irish days and a week with my daughter before starting. Had ice cream for dinner ladt night.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Postby O Stoma Mia » Wed Mar 21, 2018 2:07 pm

Caat55 wrote:... I have an 8:15 start time on the 22nd for my first infusion.

retiredteacher wrote:I start Thursday as well!

Good luck on the first infusion for both of you.

It looks like this might be a good comparative study, where one of you will be having infusions through a port and the other will be having infusions through an IV cannula in the arm. There might be some noticeable differences between these two methods. I guess time will tell.

How to prepare for infusion chemotherapy
https://medicorx.com/how-to-prepare-for-infusion-chemotherapy/

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Postby Caat55 » Wed Mar 21, 2018 11:55 pm

O Stoma Mia wrote:
Caat55 wrote:... I have an 8:15 start time on the 22nd for my first infusion.

retiredteacher wrote:I start Thursday as well!

Good luck on the first infusion for both of you.

It looks like this might be a good comparative study, where one of you will be having infusions through a port and the other will be having infusions through an IV cannula in the arm. There might be some noticeable differences between these two methods. I guess time will tell.

How to prepare for infusion chemotherapy
https://medicorx.com/how-to-prepare-for-infusion-chemotherapy/


Thank you. I have a bag of goodies backed for tomorrow, book, ipad, snacks, earbuds. I have a friend driving me at the clinic's suggestion. Fortunately we are having rain and it's not too cold.
Fingers crossed,
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Postby Caat55 » Thu Mar 22, 2018 5:39 pm

Got a cramp in my right arm during infusion, muscle in forearm is sore to touch now, like I had been working out. There was an odd feeling in the back of my throat which makes me want to clear my throat and a funny taste kind of. I am a little loopy and glad I didn't have to drive. Definitely some tingling in my hands right hand more than left but it seems to have resolved. I managed to get more than half of a basket crocheted, using the time in the chair to start and finish something with some cord I have had for probably 20 years.
A huge thunder and lightening storm, deluge of rain when I got home. My dog was happy I was hear to comfort him.
One down, four to go.
Time for a nap,

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018


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