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Joined: Sat Jun 11, 2016 12:45 pm
Facebook Username: Joseph Piazzola


Postby Joecool1983 » Sat Jan 13, 2018 9:28 am

I finally made the jump. I had surgery Thursday to get a colostomy. Feeling very relieved to have made the decision and relieved that I got the stent, that I had put in 4 weeks ago, removed yesterday.
Diagnosed 12/17/15- 32 years old- Tumor 3"x1.5" at the Rectosigmoid Colon
Stage IIIA T3N1M0
Radiation and chemotherapy(Xeloda pill form) January 2016- February 2016
4/11/16- Surgery to remove the tumor/colon resection. Robotic LAR/Dissection of Lymph Node. 1/19 showed any involvement
5/16-10/16- Follow up chemotherapy- FOLFOX, 8 Treatments
1/17- Routine CT scan found 3 Metastases on my Liver
4/17-8/17- 5 Treatments Avastin/Irinotecan

Posts: 197
Joined: Tue Nov 10, 2015 10:29 pm

Re: Colostomy

Postby Soccermom2boys » Sat Jan 13, 2018 2:36 pm

Welcome to the club! It sounds like it was your decision so hopefully that makes it easier on you for the long term. Truly not the horrible scenario that so many perceive it to be, just different. Take it easy for the first few months and then before you know it this will become more normal to you. Wishing you an uneventful recovery. :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

Posts: 5873
Joined: Sun Apr 16, 2006 4:09 pm

Re: Colostomy

Postby Lee » Sun Jan 14, 2018 7:00 pm

Glad you made it through surgery. I too have colostomy, best decision I ever made. I assume you will be on a low fiber diet for awhile.

Remember to keeping walking, it really does help with the healing process.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Posts: 8
Joined: Wed Nov 29, 2017 9:05 pm

Re: Colostomy

Postby etaylor22 » Tue Jan 16, 2018 5:23 pm

The Colostomy is not as bad as I thought. You will make it through, but there are bad days. The most helpful person to me has been the rep at the manufacturer coloplast. He helped me SOOOO much with product. You will be glad you did it.
DX: Rectal Cancer (RC)
11/1/17 Blockage, CEA 4.0, Diagnosis IIIb T4a N1 M0
11/2/17 Colostomy
12/5/17 to 1/10/18 Radiation / Xeloda
2/14/18 MRI IIIb T3 N0 M0, yPT2, Radiology report "Successful treatment for rectal cancer."
2/26/18 LAR, temp loop ileostomy, surprise appendectomy. Misery scale 8, Pain scale 3
3/1/18 Restage 2?, Path-neg margins, 19 Lymph nodes neg
4/10/18 XR Barium Enema - ileo reversal leak test
4/27/18 Reversal
In Denial...Happiness Lost

Posts: 13
Joined: Sun Dec 17, 2017 8:58 pm

Re: Colostomy

Postby BethD » Wed Jan 17, 2018 1:15 pm

Best wishes to you Joecool.
I had my surgery last Monday and overall, its not too bad

talk to you soon
Dx: Feb 2017 RC 2 cm from AV
Stage 3a
Laparascopic with colostomy
Radiation Oct/Nov 2017

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