Got good news today!

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Aqx99
Posts: 383
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Location: Pfafftown, NC

Got good news today!

Postby Aqx99 » Thu Jan 11, 2018 7:41 pm

I saw my GYN oncologist today for the first time. She reviewed the surgical notes, my CT scan and performed a pelvic exam. She is going to present my case to the tumor board next month. As it stands now, she feels that my rectal cancer treatment doubled as ovarian cancer treatment. She said oxaliplatin is not the usual drug used to treat ovarian cancer, but because it is platinum based, it did the job. She also said that the radiation helped treat it as well. Unless the tumor board decides otherwise, I will not need further surgery or chemo. I will be monitored as a post-treatment patient. She will coordinate with my medical oncologist so that tests and scans can be run for both of them at the same time. I am so relieved that I won't need anymore treatment. I can now focus all of my energy on my ileostomy reversal and recovery.
Last edited by Aqx99 on Thu Jan 11, 2018 9:32 pm, edited 1 time in total.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal
3/21/18 CT showed enlarged thymus
4/6/18 PET

NHMike
Posts: 1100
Joined: Fri Jul 21, 2017 3:43 am

Re: Got good news today!

Postby NHMike » Thu Jan 11, 2018 8:53 pm

That sounds like great news and especially as it means progress.

I'm really glad that the Oxaliplatin is so effective in attacking cancer.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

heiders33
Posts: 178
Joined: Sat Nov 04, 2017 11:08 am

Re: Got good news today!

Postby heiders33 » Thu Jan 11, 2018 8:57 pm

Great news! I would love to know how your reversal goes.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal

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susie0915
Posts: 735
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Got good news today!

Postby susie0915 » Thu Jan 11, 2018 9:08 pm

Great news. So happy for you.
58 yrs old Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc feels scar tissue
7/17 no change lung nodule
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule or scarring/inflammation

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Got good news today!

Postby Iitg ritesh » Thu Jan 11, 2018 9:33 pm

its very good news
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

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Robino1
Posts: 417
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Got good news today!

Postby Robino1 » Thu Jan 11, 2018 10:29 pm

Very good news indeed! Yay!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
12/8/17 Markedly decr ant peritoneal nodularity since 8/29/17 compat w/ marked posi respns to therapy
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8
BRAF V600e

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O Stoma Mia
Posts: 1202
Joined: Sat Jun 22, 2013 6:29 am
Location: Budapest

Re: Got good news today!

Postby O Stoma Mia » Fri Jan 12, 2018 12:24 am

Aqx99 wrote:...Sometime early next year I will have my reversal...

Great news! And when exactly are they going to schedule your reversal?
.
.
Last edited by O Stoma Mia on Sun Jan 14, 2018 11:46 pm, edited 1 time in total.

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ocstacy
Posts: 230
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: Got good news today!

Postby ocstacy » Fri Jan 12, 2018 12:32 am

I am really happy for you! Congrats!!
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
No Cancer!! YAY!
Chemo Xeloda post-surgery following reversal 05/2018
Me: Colonoscopy age 38. 08/17 Benign polp. internal hemmy's post partum

Aqx99
Posts: 383
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Got good news today!

Postby Aqx99 » Fri Jan 12, 2018 11:02 am

O Stoma Mia wrote:
Aqx99 wrote:...Sometime early next year I will have my reversal...

Great news! And when exactly are they going to schedule your reversal?
.
.


January 23rd is the big day!
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal
3/21/18 CT showed enlarged thymus
4/6/18 PET

User avatar
Shana
Posts: 300
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Got good news today!

Postby Shana » Fri Jan 12, 2018 4:39 pm

Wonderful news! So happy for you!! :D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8
CT-Scan 9/17, 12/17, 3/18 Shrinkage of liver mets continues, no blockage
Irinotecan increased from 100 to 150 mg with tolerable side effects
Reoval & resection still on hold. Have to be stable enough to be OFF chemo one month prior and after surgery.

Caat55
Posts: 277
Joined: Sat Dec 23, 2017 6:01 pm

Re: Got good news today!

Postby Caat55 » Sun Jan 14, 2018 8:14 pm

:D We all need good news
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

Lee
Posts: 5505
Joined: Sun Apr 16, 2006 4:09 pm

Re: Got good news today!

Postby Lee » Sun Jan 14, 2018 8:27 pm

I thought I posted something earlier, can't find it now. Anyway, good news is ALWAYS better than not so good news. Sometimes on this journey, we take what we can get.

Sorry for your ovarian cancer diagnoses, butt it good to know, the FOLFOX pulled double duty.

CONGRATULATION!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

DarknessEmbraced
Posts: 2946
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Got good news today!

Postby DarknessEmbraced » Wed Jan 17, 2018 12:36 pm

That's wonderful news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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