nobuttgirl wrote:My brother is 46, Stage IV and he works for a company snaking sewers.
He is almost finished with 6 months of Fulfiri
Doctors say they want him to be on maintenance chemo indefinitely. I'm not sure the name of the drug.
If you're on maintenance chemo, what are you on? How long have you been on it? How do you feel? Are you working?
...Two days after making that comment my older brother was in the ER with an appendicitis and high fever. His appendix ruptured and he was septic. He had an emergency appendectomy and colon resection. After the surgery the surgeon informed my sister-in-law his colon didn’t look healthy and mentioned the possibility of Crohn’s disease. When the surgeon was informed of the Lynch Syndrome he became “more concerned.” We had to wait a few days for the pathology on the part of his colon that was removed. It was, of course, positive. He has stage 3 colon cancer. His head WAS in the sand. He never had a colonoscopy. I was SO angry and sad. I thought, maybe if I had hounded him more to get a colonoscopy; maybe I should’ve paid for it for him; I should’ve done more. I’m an advocate. I talk to people all the time about getting screened. I go to Washington DC to lobby congress for better screened guidelines and funding to educate the public on the importance of screening but I failed my own brother. He says it’s not my fault, that nobody could ever make him do anything he didn’t want to. He says he’s not going to ignore anything now. He’s going to fight so he can watch his son grow up. But it didn’t have to be this way. If you have family history of colon cancer, especially when people in your family have had it under the age of 50, you need to get a colonoscopy. Don’t think this can’t happen to you.
nobuttgirl wrote:....what are you on? How long have you been on it? How do you feel? Are you working?
e_enyedy wrote:I did 8 3-weekly sessions of Xelox+Avastin, starting May 2016, ending in October. The end of cycle PET/CAT scan (done in the same month) showed NED. Since then I am on a "maintenance treatment" of Capecitabine (Xeloda = 5FU) 2 weeks on/ 1 week off schedule with an Avastin infusion every 3 weeks, at the start of the cycle. The plan is to keep me on this schedule at least for a couple of years, assuming nothing changes (still NED)
I have a friend with breast cancer, she has been on an oral "maintenance treatment" for the past 9 years.
I might add the fortunately I am one of the very lucky ones, with no side effects from the chemo.
All the best,
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