mariane wrote:I wish you the good consultation with Dr. Kemeny and a plan to get these tumors out.
mariane wrote:I am very happy that you feel well after meeting Dr. Kemeny. She always has plan and fights for her patients.
I also came back uplifted from the first consultation with her. She told me that we would get this cancer. And indeed she got it
I am cheering your mom and you!
njf wrote:We thank you so much! Its posts from people like you and reading other posts on forums like this that helped us decide on a course of action to take and I think MSK was a very good choice. Dr. Kemeny ordered another CT scan because she wanted a base going forward, although my mom did have a slight jump in CEA from her previous bloodwork the CT scan showed further tumor regression. They could only measure 3 tumors on the liver, the 3 largest that she had largest now being 38mm, down from 46mm on the previous report. However there is a 9mm lymph node that was mentioned that was apparently on the previous scan but wasn't really mentioned till now but it was exactly the same size as the previous scan so I am unsure what to think on that. She is also being switched from FOLFOX + Avastin to FOLFORI + Erbutix as I had suspected was the plan. She is not looking forward to the potential side effects or losing the rest of her hair, however she said to the nurse when she found out her eye lashes might grow longer "perfect!" that she could just comb those back over her head after she was shown the pictures of it.
GrouseMan wrote:Actually while my wife was on Avastin, Irrinotecan and Erbutux, she thought it was a piece of cake. Her words! Additionally her hair actually started to thicken with the addition of the erbitux. She found it was the 5-FU that was what was making her feel worse. Be sure you look into using something like Cephalexin an antibiotic if you can, as it helps aleviate the rash from erbitux quite a bit. Overall - My wife tolerated Chemo a great deal, and very seldom had the terrible side effects that many report. Kept her alive for probably another year or so with a pretty good QOL up until about 3 weeks before her last hospitalization she spent a week riding her horse every day for several hours each while watching dogs run in a field trial. A week later she was judging a field trial off horse back for two days!
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