Actually while my wife was on Avastin, Irrinotecan and Erbutux, she thought it was a piece of cake. Her words! Additionally her hair actually started to thicken with the addition of the erbitux. She found it was the 5-FU that was what was making her feel worse. Be sure you look into using something like Cephalexin an antibiotic if you can, as it helps aleviate the rash from erbitux quite a bit. Overall - My wife tolerated Chemo a great deal, and very seldom had the terrible side effects that many report. Kept her alive for probably another year or so with a pretty good QOL up until about 3 weeks before her last hospitalization she spent a week riding her horse every day for several hours each while watching dogs run in a field trial. A week later she was judging a field trial off horse back for two days!
Good luck, glad you got to see Dr K.
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017