Port Removal

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SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Port Removal

Postby SweetC80 » Tue Jan 09, 2018 10:13 am

What a great milestone! Congratulations and good luck!
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

AussieAssCancer
Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: Port Removal

Postby AussieAssCancer » Wed Feb 07, 2018 2:12 am

Thanks crew. Unfortunately, I think they f@&#ed things up.

I am more than 3 weeks out and still don’t have the same range of movement/ strength in right arm and to top things off, the wound has barely healed at all.

I did everything they said and normally heal pretty quickly so am very disappointed. They used internal dissolvable stitches and then closed the wound with glue. In the Centre of the wound/gash is what looks like a scab but is tinged blue (same colour as the glue). It’s movable when you touch it and it seems to be deeply wedged and possibly attached to something, perhaps the stitches.

Anyways, I’m seeing my GP tomorrow for him to check it out. Hopefully he’ll say it OK but it’s just strange given how quickly it healed when it was put in etc etc.

Other than that, have scan and bloods next week and then colonoscopy the week after so all in all an anxious couple of weeks :| On a positive, it’s my little girls 4th birthday on Friday and my birthday next Wednesday woohoo
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

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CRguy
Posts: 9454
Joined: Sun Feb 10, 2008 6:00 pm

Re: Port Removal

Postby CRguy » Wed Feb 07, 2018 2:19 am

Ya know what really kicks ass my friend ?

BIRTHDAYS !!!!!!
yours and your munchkin's

Oh and getting DE-ported and stuff ...
BUTT .... really B-Days :shock: :mrgreen: :mrgreen: :mrgreen:

WORD !

Love Peace and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

AussieAssCancer
Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: Port Removal

Postby AussieAssCancer » Wed Feb 07, 2018 2:26 am

CRguy wrote:Ya know what really kicks ass my friend ?

BIRTHDAYS !!!!!!
yours and your munchkin's

Oh and getting DE-ported and stuff ...
BUTT .... really B-Days :shock: :mrgreen: :mrgreen: :mrgreen:

WORD !

Love Peace and Harmony
CRguy


Thanks boss!!!
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

User avatar
CRguy
Posts: 9454
Joined: Sun Feb 10, 2008 6:00 pm

Re: Port Removal

Postby CRguy » Wed Feb 07, 2018 2:30 am

Backatcha' homie

Keep healing well on the Journey !
(( and having kickass B-Day parties with munchkins = da' BEST ))
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

AussieAssCancer
Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: Port Removal

Postby AussieAssCancer » Thu Feb 08, 2018 4:10 am

So the GP confirmed it - the glue has stuck to the internal stitches :cry: He trimmed some of it but couldn’t remove it for risk of opening the whole wound. He gave me a dose of antibiotics to be on the safe side and I have to go back in a week to see whether there has been any improvement.

I know I shouldn’t be whining given how lucky I’ve been every other step of the way but it’s so shitty. I’ve lost the best part of our summer being unable to swim and now I’m out of the water for at least another :D week, most likely two.

I want to stress however to anyone having their port taken out that I have to be the exception to the rule. Every other person has said there’s was easy so don’t lose faith because I’ve had a rough trot.

In the grand scheme of things I’m still waaaay ahead of the game :D

AAC
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

NHMike
Posts: 1104
Joined: Fri Jul 21, 2017 3:43 am

Re: Port Removal

Postby NHMike » Thu Feb 08, 2018 4:26 am

AussieAssCancer wrote:So the GP confirmed it - the glue has stuck to the internal stitches :cry: He trimmed some of it but couldn’t remove it for risk of opening the whole wound. He gave me a dose of antibiotics to be on the safe side and I have to go back in a week to see whether there has been any improvement.

I know I shouldn’t be whining given how lucky I’ve been every other step of the way but it’s so shitty. I’ve lost the best part of our summer being unable to swim and now I’m out of the water for at least another :D week, most likely two.

I want to stress however to anyone having their port taken out that I have to be the exception to the rule. Every other person has said there’s was easy so don’t lose faith because I’ve had a rough trot.

In the grand scheme of things I’m still waaaay ahead of the game :D

AAC


Well, summer sounds really nice right now. Yesterday are area got 4-12 inches of snow. We got about four hours of freezing rain as well and it's probably a skating rink on the roads this morning. Maybe you can do a hot tub or something else below the chest.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

LisaMargo
Posts: 21
Joined: Sun Feb 26, 2017 10:26 pm

Re: Port Removal

Postby LisaMargo » Thu Feb 08, 2018 7:20 am

Hey AAC, congrats on the deporting. I hope the water will still be warm up until Easter so you have a good few months of enjoying ocean swimming this season.

Re the port I’m still glad I had one rather than using veins which looked like a real punish. My port was a bit uncomfortable & even did a twist ‘insitu’ one day, i was slightly freaking out & it was horrible to manouvre it back into position.
I thought I’d have my port in for another year or so after chemo but my onc said it was okay to have it out , & it seemed like a hassle to go in for flushing every 6 weeks so I booked the deporting. I wanted, asked & expected to be awake for it - but the surgeon surprised me in theatre & put me to sleep ( not sure why).
My chest still hurts sometimes with scar tissue or something. Fingers crossed I don’t need it again. Here’s hoping for us all.
Margo
20 feb 17 Went in for a colonoscopy, woke up with cancer
21 feb 17 LAR descending colon, Stage 3c
27 mar 17 port in
29 mar 17: 12 sessions FOLFOX.
51 yo F, married with 3 teenage girls

User avatar
tdsamal
Posts: 619
Joined: Tue Dec 29, 2009 12:49 am
Facebook Username: malby.tammy
Location: Salem Oregon

Re: Port Removal

Postby tdsamal » Sat Feb 10, 2018 2:00 am

I used to dream about the day I would get mine removed. I hated it when I first got it. Now I'm so used to it that I hardly remember I have it in. Just as well since I don't think I will ever get it out. Congrats to you! Enjoy the freedom.
Tammy
Dx st IV CC & colon resection 11/09
Way to much to list
Last recurrence December 2017


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