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Re: Chemotherapy Journey
Posted: Sun Jan 21, 2018 9:10 pm
by Rikimaroo
Thanks guys. Closing up feeling in throat worse feeling ever. I do the swishing. Cold temps making all my bottled water cold sucks and correct inhating drinking heated water. So my wife went and bought a bunch of different teas which have helped. Still it’s toigh. Hot cocoa, coffee, ginger tea, caramel sea salt tea, and many more.
Is anyone doing magic mouthwash does that help with the weird mouth feeling inside not dry just odd.
Also I have not eaten red meet since December 2016.
Re: Chemotherapy Journey
Posted: Sun Jan 21, 2018 11:00 pm
by ANDRETEXAS
My life saver was room-tempearture Pellegrino.......especially when I wanted water (water began to taste bad) Hot tea, hot coffee, broth, soup, stew...anything that would keep my throat from closing. Hang in there !!
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 5:19 am
by NHMike
Rikimaroo wrote:Thanks guys. Closing up feeling in throat worse feeling ever. I do the swishing. Cold temps making all my bottled water cold sucks and correct inhating drinking heated water. So my wife went and bought a bunch of different teas which have helped. Still it’s toigh. Hot cocoa, coffee, ginger tea, caramel sea salt tea, and many more.
Is anyone doing magic mouthwash does that help with the weird mouth feeling inside not dry just odd.
Also I have not eaten red meet since December 2016.
It's been a challenge for my wife as she may make something and I may not want to eat or or I just feel nauseous. She hands me a dish with a fork and I can't use the fork without gloves. I do get tired of hot drinks all the time but they work so I have to live with it. I might have a tiny bit of ice cream in my off week if I can handle it. I normally have it once or twice a year. Not being able to have yogurt, cottage cheese and other things is a pain.
I do feel better this morning.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 9:03 am
by Robino1
Rikimaroo wrote:Thanks guys. Closing up feeling in throat worse feeling ever. I do the swishing. Cold temps making all my bottled water cold sucks and correct inhating drinking heated water. So my wife went and bought a bunch of different teas which have helped. Still it’s toigh. Hot cocoa, coffee, ginger tea, caramel sea salt tea, and many more.
Is anyone doing magic mouthwash does that help with the weird mouth feeling inside not dry just odd.
Also I have not eaten red meet since December 2016.
I use the Magic Mouthwash. It takes about a week for all the crud to settle down. I get almost a week without mouth issues. As soon as I feel smoothness on the roof of my mouth, I stop using the Mouthwash.
Food just isn't very appealing during this time period. But I have found foods that I like that get past the yuck time. I have found one food that I used to love, I just can't eat anymore. No biggie.
I still eat red meat on occasion.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 4:28 pm
by Rikimaroo
NHMike wrote:Rikimaroo wrote:Thanks guys. Closing up feeling in throat worse feeling ever. I do the swishing. Cold temps making all my bottled water cold sucks and correct inhating drinking heated water. So my wife went and bought a bunch of different teas which have helped. Still it’s toigh. Hot cocoa, coffee, ginger tea, caramel sea salt tea, and many more.
Is anyone doing magic mouthwash does that help with the weird mouth feeling inside not dry just odd.
Also I have not eaten red meet since December 2016.
It's been a challenge for my wife as she may make something and I may not want to eat or or I just feel nauseous. She hands me a dish with a fork and I can't use the fork without gloves. I do get tired of hot drinks all the time but they work so I have to live with it. I might have a tiny bit of ice cream in my off week if I can handle it. I normally have it once or twice a year. Not being able to have yogurt, cottage cheese and other things is a pain.
I do feel better this morning.
I feel better today as well, and I try to have ice cream like maybe 10 days into my off days. Maybe take the girls (wife +2) to dairy queen or making a molten lava cake with my new Instant Pot Pressure cooker LOL....I am able to drink room temperature water today surprisingly but the lockup feeling comes if I drink nonstop.
Pooping is really tough right now since I am constipated and the pellet pooping really hurts. I don't even want to poop. I ate some strawberries to see if it will help.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 6:42 pm
by mozart13
Watermellon saved me from being dehydrated, there were nights , usually chemo week, my body was burning, I was literally swimming in my sweat, would get up and finish half watermellon in no time.
Dehydration could be the cause of constipation, as well as zofran, not sure if you are taking it for nausea, usually they would give it to me before chemo.
Sensitivity to cold was part of package, now is winter time, it is probablly harder.
Mouth care I did with baking soda, had no issuess, except when went for cleaning, the lady that did, said there was so much calcification, usually from mouth being alkaline, she was right on the money as baking soda makes you alkaline, she didnt know my history.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 6:56 pm
by Rikimaroo
Thanks Mozart. Will have to pick some up. I am eating some grapes right now. Need more fruits i think, and yeah its hard to drink liquids but I am trying very hard, the constipation hurts so much when passing the poop, little balls of butt buster, ugh!! Yeah they would give me zofran before my infusion.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 7:33 pm
by mhf1986
Our dentist recommended Biotene and Act. So DH uses one in the morning and one in the evening. Apple juice is good for getting things moving after Zofran.
DH and the Onc have decided that the Xeloda side effects are too much so it's back to the pump in a week.
Re: Chemotherapy Journey
Posted: Mon Jan 22, 2018 8:06 pm
by Caat55
Hi Riki,
Thank you for your words of wisdom to my questions. This all sucks.
Try kiwi and apricots. If you can blend them into a smoothie or with ice cream for some calories.
S
Re: Chemotherapy Journey
Posted: Thu Jan 25, 2018 9:56 am
by love3
ANDRETEXAS wrote:My life saver was room-tempearture Pellegrino.......especially when I wanted water (water began to taste bad) Hot tea, hot coffee, broth, soup, stew...anything that would keep my throat from closing. Hang in there !!
I second the idea of sparkling water. LaCroix sparkling flavored waters at room temperature tasted so much better to me than regular water which just tasted so flat to me.
Also I found that I could drink orange juice at a slightly lower temperature than regular water without an effect for some reason.
Regarding the constipation-my oncologist had me take stool softeners on day one of the cycle and continue until I felt I didn't need them anymore. This was a life saver! Make sure it's just a softener without a laxative.
Hang in there...take one day at a time.
Re: Chemotherapy Journey
Posted: Thu Jan 25, 2018 7:02 pm
by Rikimaroo
Thanks Love...I need to take stool softener one day one of chemo or I am just going to cave in and give up. It is so painful. Will discuss with him. Anyone else ever develop a blood clot in neck during chemo? Or port may be causing it? I have a sore throat today, but will mention to doc, as I still feel some tenderness from my previous blood clot, maybe it hasn't totally gone yet.
I hate this crap man, it really sucks!! 39 years old going through this can't believe it. What the hell did I do in my life to get cancer!!!
Riki
Re: Chemotherapy Journey
Posted: Thu Jan 25, 2018 7:23 pm
by heiders33
You didn’t do anything! Things happen that are beyond our control and we have to roll with them. It sucks but we don’t have much choice.
On the subject of carbonated beverages, I had a cold coke today and it didn’t bother my throat. I never drink coke but for some reason have been craving one lately.
Re: Chemotherapy Journey
Posted: Thu Jan 25, 2018 10:21 pm
by ktwmn
Riki, ask to have a port study done. I was having terrible pain in upper back and noticed a neck vein was enlarged. The pain was constant. So I had a port study. Sure enough it had migrated to the azygos vein and had to be taken out. (Also it had quit giving blood months before).
Re: Chemotherapy Journey
Posted: Thu Jan 25, 2018 11:04 pm
by Rikimaroo
Thanks ktwmn. I will mention to my doctor tomorrow when I call in. I was put on Xaralto about a week ago and things were feeling better but I think it’s coming back and I didn’t do avastin this time. So I think the port is the cause. I will see what he recommends. I only have three treatments left maybe they can do through arm I have good veins. Remove port.
Will discuss with Onc
Re: Chemotherapy Journey
Posted: Fri Jan 26, 2018 3:20 pm
by orlar
Chemo is harsh and constipation can be brutal. My constipation relief started on day one of the cycle by using 1 gelcap stool softner twice a day (recommended dose up to 3 gelcap daily). My GOTO that worked for me was room temp. apple juice to finally get things moving. After that, I kept taking 1 stool softner everyday the rest of the cycle.
I also had anal fissures that made every BM feel like passing glass shards. My surgeon recommended the stool softner, not straining excessively during a BM, and using baby wipes as the final clean up all to help heal the fissures. They can also prescribe a topical cream (nitroglycerin based I think) to help heal the fissures.
Hopefully your clot and neck pain will be resolved very soon. Hang in there, you're halfway through it!