heiders33 wrote:I’m thinking about asking for a reduction for my sixth and last cycle. I don’t know. This fifth one has hit me hard with fatigue, cold sensitivity, and lack of appetite. It’s definitely more acute and lasting longer. But maybe I should just power through for the last one since none of these side effects are abnormal. It’s hard to say because it’s so tough, and yet I know it’s doing its job.
Rikimaroo wrote:It is really hard especially without an ileo. pellet pooping hurts alot then it comes normal with diarrhea and that hurts. I am on the 12 day break right now, today is day 2. 31st my next treatment. Not being able to even drink room temperature water sucks. Florida is actually cold right now, nothing like up north, but still cold enough to keep the water cold.
reduction of Oxi might be an option since these shocks are really painful and brutal. I will mention to my Onc. I am hanging in there, but dread my next treatment and feel like throwing up just thinking about it. I just want to get this over with.
NHMike wrote: I think that some of this depends on what's going on with the rest of your life. I have a friend that's retired and he went through four cycles and it was hell for him. But he could sleep all day and didn't have a lot of other responsibilities. If I had one more to do and was on short-term disability, I would ask for a dosage reduction and go through with it. It's a tough decision.
NHMike wrote:Rikimaroo wrote:It is really hard especially without an ileo. pellet pooping hurts alot then it comes normal with diarrhea and that hurts. I am on the 12 day break right now, today is day 2. 31st my next treatment. Not being able to even drink room temperature water sucks. Florida is actually cold right now, nothing like up north, but still cold enough to keep the water cold.
reduction of Oxi might be an option since these shocks are really painful and brutal. I will mention to my Onc. I am hanging in there, but dread my next treatment and feel like throwing up just thinking about it. I just want to get this over with.
I bought an electric kettle and it's been a life-saver. It heats up water very quickly and I pour it into a mug and it stays warm for quite some time. If the water in the mug gets too cold, then I just add some more hot water. I would have trouble getting enough fluids without it. It sits next to my laptop.
heiders33 wrote:NHMike wrote:Rikimaroo wrote:It is really hard especially without an ileo. pellet pooping hurts alot then it comes normal with diarrhea and that hurts. I am on the 12 day break right now, today is day 2. 31st my next treatment. Not being able to even drink room temperature water sucks. Florida is actually cold right now, nothing like up north, but still cold enough to keep the water cold.
reduction of Oxi might be an option since these shocks are really painful and brutal. I will mention to my Onc. I am hanging in there, but dread my next treatment and feel like throwing up just thinking about it. I just want to get this over with.
I bought an electric kettle and it's been a life-saver. It heats up water very quickly and I pour it into a mug and it stays warm for quite some time. If the water in the mug gets too cold, then I just add some more hot water. I would have trouble getting enough fluids without it. It sits next to my laptop.
I haven't heard of these shocks being a side effect. Definitely ask your onc about it.
susie0915 wrote:My ileo was reversed early due to a bowel blockage so I also didn't have it during chemo. It was tough as I did experience alot of diarrhea. My oncologist prescribed questran which is a powder you put in water or orange juice. It is used for cholesterol but bulks up stool and helps with diarrhea. It seemed to help.
Rikimaroo wrote:No they are shocks (not like electric shocks lol or maybe irritation spikes) Maybe like Gas shocks, hard to explain, the butt hole one is just sensitivity and irritation. Correct it is not normal, that is what I heard from another doctor. I think I must of got some damage from the Radiation Therapy back in Feb 2017 and since shocks are related to nerves and oxi affects your nerves it is most likely what it is. At least that what the other oncologist said. They are very painful in my stomach and anus. They go away after 1-2 days of treatment so highly doubt there going to stop treatment.
Drinking warm water is hard and sucks. Really not easy especially when under this treatment.
I don't know if I can handle, I just want my surgery. I gotta stay strong. Not easy.
I got it good on the job side, I am in IT so I can work from home. The mgmt loves me and just wants me to get well.
Rikimaroo wrote:No they are shocks (not like electric shocks lol or maybe irritation spikes) Maybe like Gas shocks, hard to explain, the butt hole one is just sensitivity and irritation. Correct it is not normal, that is what I heard from another doctor. I think I must of got some damage from the Radiation Therapy back in Feb 2017 and since shocks are related to nerves and oxi affects your nerves it is most likely what it is. At least that what the other oncologist said. They are very painful in my stomach and anus. They go away after 1-2 days of treatment so highly doubt there going to stop treatment.
Drinking warm water is hard and sucks. Really not easy especially when under this treatment.
I don't know if I can handle, I just want my surgery. I gotta stay strong. Not easy.
I got it good on the job side, I am in IT so I can work from home. The mgmt loves me and just wants me to get well.
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