Diagnosed 9 years ago TODAY! 1/2/2009

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
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Diagnosed 9 years ago TODAY! 1/2/2009

Postby dianetavegia » Tue Jan 02, 2018 4:34 pm

Diagnosed during a colonoscopy (partial obstruction had made me very ill) on 1/2/2009. Stage IIIB for 3 years. In April it will be 6 years since my liver resection.

http://www.justalittletalk.com/2018/01/nine-years-ago-today/
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

Beccaschocked
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Facebook Username: Becca Fender schock

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Beccaschocked » Tue Jan 02, 2018 4:39 pm

Congrats and thanks for sharing!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED

Lee
Posts: 5678
Joined: Sun Apr 16, 2006 4:09 pm

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Lee » Tue Jan 02, 2018 4:48 pm

That is AWESOME. May you always reside in NE$Dville,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Rikimaroo
Posts: 138
Joined: Tue Dec 20, 2016 8:48 pm

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Rikimaroo » Tue Jan 02, 2018 5:36 pm

Awesome News. Did you change your diet?
Diagnosed at 38 y/o male, 3 kids 7,9,14 - Now 39.
RC T3N1M0
Chemo Rad, CCR - W&W 5/2017
Local Recurrence, discuss options 11/26/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/15/2017, folfox/oxapalatin + avastin starts on the 12/20/2017
Blood Clot in Neck 1/16/2018, stop avastin, continue FolFox
TME/Liver Resect 4/3/2018
Biopsy Results 0/8 Lymph nodes clear, margins not clear, CEA now .8,
Chemo Finish 8/15/2018
Reversal October 17th 2018

KathyLynn
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Joined: Thu Aug 31, 2017 3:40 pm
Location: Rock Hall, MD

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby KathyLynn » Tue Jan 02, 2018 8:48 pm

Congratulations!!
Happy And Healthy New Year!!

KathyLynn
8/2017. RC
11/27/2017. Robotic LAR
12/2017 Moderatley differentiated, 3.0 cm in greatest dimension
Macroscopic tumor perf: not identified. All margins of resection and proximal neg for tumor. Distal anastomotic ring: Neg for tumor
Lymphovascular and perineural invasion: not identified. Tumor deposits: not identified
Lynch : Negative Margin proximity: proximal: 27.0 cm. Distal: 2.0 cm. Radial: 2.5 cm
#of possible lymph nodes: 33. 0/15
1/13/2018. T2N0M0 with isolated tumor cells (ITC)
7/12/2018. CEA 2.0.

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Robino1
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Facebook Username: Robin.lawthers
Location: Florida

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Robino1 » Tue Jan 02, 2018 10:07 pm

Very awesome! Congrats!! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby SweetC80 » Wed Jan 03, 2018 3:00 pm

Congratulations! Happy New Year!
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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dianetavegia
Posts: 2696
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
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Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby dianetavegia » Wed Jan 03, 2018 7:11 pm

Rikimaroo wrote:Awesome News. Did you change your diet?

I gave up all red meat. I take 6,000 IU of D3 daily and keep my levels between 87 and 105. I also have taken 2 full strength aspirin daily since chemo ended 8 1/2 years ago.

I'm Stage IVa and cured.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby nkoske » Wed Jan 03, 2018 8:20 pm

That is great!! Congrats!!
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

Rikimaroo
Posts: 138
Joined: Tue Dec 20, 2016 8:48 pm

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Rikimaroo » Wed Jan 03, 2018 11:50 pm

Thank you for your update. I also gave all red meat, it’s been a year now. I am taking ginger and turmeric in powder form in capsules. I am also drinking ginger tea. My doctor said it’s fine to take while on chemo therapy.
Diagnosed at 38 y/o male, 3 kids 7,9,14 - Now 39.
RC T3N1M0
Chemo Rad, CCR - W&W 5/2017
Local Recurrence, discuss options 11/26/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/15/2017, folfox/oxapalatin + avastin starts on the 12/20/2017
Blood Clot in Neck 1/16/2018, stop avastin, continue FolFox
TME/Liver Resect 4/3/2018
Biopsy Results 0/8 Lymph nodes clear, margins not clear, CEA now .8,
Chemo Finish 8/15/2018
Reversal October 17th 2018

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LeonW
Posts: 347
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Location: Amsterdam, Netherlands

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby LeonW » Thu Jan 04, 2018 5:58 pm

Wonderful, well done. What a great way to kick off a New Year!
Best wishes, L
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

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Frenchie's Wife
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Location: Alberta, Canada

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Frenchie's Wife » Sun Jan 07, 2018 11:56 pm

Congratulations, that is awesome news!! Whatever you are doing keep it up :)

Frenchie's Wife
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby DarknessEmbraced » Wed Jan 10, 2018 12:54 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

fumaros
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Location: Syracuse, NY
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Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby fumaros » Wed Jan 10, 2018 2:12 pm

Congratulations.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Ron50
Posts: 665
Joined: Fri Feb 10, 2006 7:04 pm

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Postby Ron50 » Thu Jan 11, 2018 6:39 am

Hugs Di , wishing you many more, Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo


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