Question for those with lung mets or suspicious nodules in lungs

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RobDontGiveUp
Posts: 30
Joined: Mon Jul 06, 2015 9:17 pm

Question for those with lung mets or suspicious nodules in lungs

Postby RobDontGiveUp » Sun Dec 31, 2017 10:33 pm

Just curious how big the nodules in your lungs are and what your Dr's did about them

I'll just type what was on my last scan. The first one is the only new nodule. The other ones had never registered on a Pet scan, but showed up on CT scans with contrast, some over a year ago.


"There is a new irregular pulmonary nodule in the upper left lobe measuring 11 mm. There is an irregular 14 mm pulmonary nodule in the left lower lobe that measured about the same size but the central cavitation has filled in. A 5 mm left lower lobe pulmonary nodule is roughly stable since the August study. In the right lower lobe there is an ill-defined 10 mm nodule that was 12 mm before."




I have had several upper respiratory infections and Dr. says it could be from that. Right now he plans just to continue Folfiri with Vectibix since none of my lymph nodes are growing. I've been stage IV from the beginning with extensive lymph node involvement but no cancer for sure in any other organs. Had one Pet scan that had a high liver SUV uptake but no lessons and Pet scans since showed normal uptake and still no lesions.
35 M dx Stage IVA colon cancer 7/15 w/
mets to retroperitoneal lymph nodes, suspected neck and para aortic as well
CAA 19-9 <3
12 rounds of FOLFOX W Vectibix 7/15
partial remission with shrinkage of tumor and ln's. Switch to XelodaAvastin 12/15
complete remission NED 6/16 Still on XelodaAvastin
Cancer returns in ln's Start Folfiri Vectibix 10/16
Shrinkage in ln's Folfiri vectibix 2/17
Tumor returns to cecum but ln's remain stable, right hemi 7/17
Folfiri Vectibix 8/17
lung mets 2 nods 2.5cm Stivarga 6/18

turtle
Posts: 30
Joined: Wed Apr 15, 2015 5:02 pm
Location: Encinitas, CA
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Re: Question for those with lung mets or suspicious nodules in lungs

Postby turtle » Sun Dec 31, 2017 11:14 pm

My largest lung mass was measured as 3.7 cm wide. I had other mets in my lungs with widths of about 2 cm. I was started on FOLFIRI. I could not tolerate the side effects, so I switched to a clinical trial at UCSD that used FoundationOne tumor profiling. I then started Mekinist with irinotecan. Now I am only taking Keytruda and Mekinist.

Coral calcium may help with lungs mets: https://www.sciencedirect.com/science/a ... 1700002402
Feb. 2015 at age 39: Dx stage IIIb cecal cancer extending into appendix
March 2015 at age 40: Began FOLFOX, discontinuing early after 10 cycles due to suicidal ideation and difficulty moving
Oct. 2016 at age 41: Dx stage IV with 3 metastases to lungs (one 3.7 cm x 2.2 cm) and 1 to liver
KRAS-mutation positive

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Question for those with lung mets or suspicious nodules in lungs

Postby susie0915 » Mon Jan 01, 2018 10:27 am

I have one small 4mm nodule that was identified as non-specific that showed up last May. A three month follow up showed no change. My oncologist does not believe it is cancer, but will continue to monitor. I have another scan next week which will be 6 months from the last chest scan. I do see a pulmonologist as I have interstitial lung disease (scarring & inflammation) that could've been caused by the chemo or a auto immune disorder. She says 4mm is too small for biopsy or pet scan as it would have to at least double in size for it to pick up. So we just monitor to see if there is any growth. I know there are nodules that can be suspicious of cancer upon visualization of the scan and others need further testing or monitoring.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Beccaschocked
Posts: 40
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Question for those with lung mets or suspicious nodules in lungs

Postby Beccaschocked » Tue Jan 02, 2018 4:20 pm

My nodule initially showed up in 2016 at 4mm. It was stable for 1.5 years, but in Nov. grew to 12mm.


Hoping it was a lone wolf!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9......
7/18-2023 - Clean Scans


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