Not sure Xeloda is for DH...thinking about going back to the pump. Much worse hand/foot (he could barely walk) caused drop from 3000 mg to 2000mg 2nd round. For this 3rd round now, he's trying 2500mg and tips of fingers are slightly cracked (it's cold/snow so that hasn't helped) but feet are fine. Diarrhea mostly controlled by many Imodiums. Tired all the time, lots of afternoon naps and that's sort of depressing him. Cold all the time; described as bone deep cold. Bilirubin up to 2.9 but he doesn't look yellow; nurse called back-up oncologist who said go ahead with treatment this week. We're guessing regular oncologist will put it off a week next time as he didn't like it when bilirubin was at 2.2 in October and he did call a delay of game.
So...can he do FOLFOX+Avastin only every 3 weeks? Or is it a must-do every 2 weeks? The every 3 weeks has been helpful in that we are not driving 75 minutes each way to the hospital for infusion and blood work is less often; it seems more normal for him and he can go to work more (he likes his job!). I guess that's the trade-off we have to figure out. But if the Xeloda is causing the bilirubin to rise so much and delaying treatment, that can't be good. It took a year on FOLFOX for the bilirubin to rise over 2 and it went right back down after being off an extra week.
CT scan/onc meeting is Jan 15th but CEA has dropped to 29 so I'm convinced the OX is back at work which is good.
M