258ButterflyMama wrote:i also have no idea how to post whatever it is you all are putting in your signatures. .all those abbreviations make no sense to me.
258ButterflyMama wrote:not sure what to do. . .
i'm stage 3 c.. seven weeks out from dx and emergency surgery and removal of my tranverse colon and part of my left colon.
i'm 45 years old and mother to three kids 9, 11, 13. . .
i asked for enzyme test of 5fu and the last paragraph of that report said that i might be at higher risk of toxicity of that med. . .
258ButterflyMama wrote:... getting a port on Tuesday, start chemo on Wednesday - every other week for 24 weeks...
258ButterflyMama wrote: . . . i just have no idea what all those abbreviations are NED ? and other things. no idea at all. . so i guess i'll just add a signature with my entire info and someone can turn it into jargon for me?
weisssoccermom wrote:I"m a little confused about your story. It appears that your diagnosis is colon cancer, since you had your transverse colon removed. You state that you have masses in your rectum/middle which are not amenable to surgery but then you state that you had another colonoscopy this past week that removed 4 polyps. You had a colonoscopy prior to your surgery.....why didn't they see the 4 polyps that they just removed? You had surgery on 11/9 and they just did another colonoscopy 6 weeks later? On this last colonoscopy, why didn't they see the tumor in your rectum? Obviously they would have but you didn't say anything about it. I'm surprised that the docs that did the second colonoscopy wouldn't have biopsied the rectal mass while they were in there. Didn't they discover the rectal tumors with the first colonoscopy?
What is the primary....the rectal tumors or the one in the transverse colon? If these tumors in your rectum and your 'middle' are all mets, then based on your description, you should be a stage IV....simply because of the mets in other places.
What does your pathology say? How many lymph nodes were affected?
I have to be concerned about the quality of care that you are receiving. It just seems shocking to me that someone would have a second colonoscopy 6 weeks after having such major surgery. That procedure, in itself, is difficult on a person who just had a major part of their colon removed.
Lee wrote:258ButterflyMama wrote: . . . i just have no idea what all those abbreviations are NED ? and other things. no idea at all. . so i guess i'll just add a signature with my entire info and someone can turn it into jargon for me?
Again, you really want to read this sticky near top of forum "Terminology and abbreviation" First page and last page most useful. Click on link below, it will take you to the thread.
viewtopic.php?f=1&t=5366
FYI NED is short for No Evidence of Disease.
Lee
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