opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Please feel free to read, share your thoughts, your stories and connect with others!
Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Iitg ritesh » Fri Dec 22, 2017 1:20 pm

I had my 4 year scan on 12/18/2017 and I got my report yesterday. there is one lung nodule 3mm from my initial diagnosis(10/2013) only and it was stable till my last scan which was in April this year. In my yesterday report my lung nodule has increased from 3mm to 6mm which is freaking me out. Any thoughts ?
should I get it removed or wait and watch ?
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby susie0915 » Fri Dec 22, 2017 1:48 pm

I have a 4mm nodule that is being watched. I have a scan in January to check it. It is my understanding that a nodule must be at least 8mm to do a biopsy or for a pet scan to pick it up. Three years seems like a long time for it to be cancer. It is my understanding cancer generally grows fairly fast. My oncologist and pulmonologist both don't believe my nodule is a met as I do have scarring and inflammation in my lungs and they think it is from that. However the pulmonologist did throw out the possibility of a new lung cancer. (ugh), but have to wait and watch. What does the report say about the nodule? Mine just says non specific but because of past malignancy recommends follow up. My last scan showed no change. I'm not sure, but doctors may just recommend to continue to watch. I know it's so hard. Especially when generally if a nodule has not grown in 2 years it is considered benign.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

User avatar
peanut_8
Posts: 2240
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby peanut_8 » Fri Dec 22, 2017 2:10 pm

Have you had a PET scan? That might be of assistance.
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Iitg ritesh » Fri Dec 22, 2017 2:18 pm

@susie report says serial followup to rule out malignancy. I wish your nodule to be stable or gone by December. Its very hard for me think that it has doubled its diameter after 3.5 years.

@Terri Pet scan was not done as oncologist thought its small for pet scan to pick.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby susie0915 » Fri Dec 22, 2017 2:32 pm

Iitg ritesh wrote:@susie report says serial followup to rule out malignancy. I wish your nodule to be stable or gone by December. Its very hard for me think that it has doubled its diameter after 3.5 years.

@Terri Pet scan was not done as oncologist thought its small for pet scan to pick.

It does seem weird that is would grow after 4 years. Did it grow from the April scan? Or was it the April scan when it showed growth to 6mm? It may still be too small to do further testing, I don't know. I was told had to be at least 8 mm for biopsy or pet scan to pick up. I know you prob already know this. This is so hard, I'm sure you were told if stable for two years it's assumed to be benign. Did you contact your oncologist?
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Iitg ritesh » Fri Dec 22, 2017 2:39 pm

It was not grown in April scan. it was stable till that time. we saw this growth in yesterday oncologist visit. so most likely it has grown after April this year. yes PET scan will not be helpful at this point. yes in my last scan they told it is stable and looks like benign etiology. But in my recent report it is written for serial followup to rule out malignancy.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby susie0915 » Fri Dec 22, 2017 3:22 pm

Yeah I'm not sure. Maybe call your oncologist. I'm sorry you have to worry about this. Hopefully it will turn out not to be anything to worry about.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Iitg ritesh » Fri Dec 22, 2017 3:30 pm

I did call her and she is in favour of wait and watch. but I am not ready to wait another 3 month. Not sure what should I do.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

User avatar
GrouseMan
Posts: 750
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby GrouseMan » Fri Dec 22, 2017 3:32 pm

During the course of my wife's treatment of nearly 4 years they kept an eye on some nodes in her lungs initially thought to be mets. But over that time period they never really showed any outward signs of being mets. They hardly changed at all. The only way to tell if they were mets would have been biopsies and the oncology team thought that too risky seeing as she had other known mets that they were treating already with FOLFOX, Then FOLFOX + Avastin then 5-FU and Avastin, followed by Irinotecan, Avastin, and Erbitux. No changes there at all. Measurements of small mets are kind of unreliable in my opinion on that scale. Also they are subjective as well depending on the person reading the scan. Same Radiologist both times? One might determine the boundary different than another.

About all I think you can do is take a wait and see position of this sort pf thing. Monitor all your blood work for potential markers (CEA etc....).

Good Luck.

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

User avatar
juliej
Posts: 2852
Joined: Thu Aug 05, 2010 12:59 pm

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby juliej » Fri Dec 22, 2017 4:30 pm

GrouseMan wrote:During the course of my wife's treatment of nearly 4 years they kept an eye on some nodes in her lungs initially thought to be mets. But over that time period they never really showed any outward signs of being mets. They hardly changed at all. The only way to tell if they were mets would have been biopsies and the oncology team thought that too risky seeing as she had other known mets that they were treating already with FOLFOX, Then FOLFOX + Avastin then 5-FU and Avastin, followed by Irinotecan, Avastin, and Erbitux. No changes there at all. Measurements of small mets are kind of unreliable in my opinion on that scale. Also they are subjective as well depending on the person reading the scan. Same Radiologist both times? One might determine the boundary different than another.

About all I think you can do is take a wait and see position of this sort pf thing. Monitor all your blood work for potential markers (CEA etc....).

Good Luck.

GrouseMan

Agree with GrouseMan on taking a wait-and-see approach combined with active monitoring of blood markers.

My story: I had a nodule that started growing and was flagged by a radiologist as "likely to be metastatic." Its shape was irregular which is frequently a sign of a met. Because biopsies are usually inaccurate in these situations and there was some fear of "seeding" if it turned out to be a met, the decision was made to simply remove it via a VATS procedure.

It turned out to be a benign granuloma -- not cancer. The key thing though was that my CEA did not go up when the nodule started growing. So hence my advice on monitoring CEA and other bloodwork (LDH, etc) to see if there's any inflammation. If bloodwork remains stable, then there's a strong likelihood (but not certainty) that it's nothing. Still, some thoracic surgeons like to remove even benign nodules if they are growing, following the "better safe than sorry" school of medicine.

Hope this helps.
Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

Beccaschocked
Posts: 30
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Beccaschocked » Tue Jan 02, 2018 5:18 pm

I had a stable nodule for almost two years. Unfortunately, my last scan showed growth.

We opted to remove it despite a negative biopsy and I’m so glad we did as it was positive for cancer. This decision was made based on an increasing CEA (an excellent indicator for me) along with the growth.

I’m so sorry to hear you’re going through this and am sending up positive thoughts and prayer for a benign nodule.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby susie0915 » Tue Jan 02, 2018 5:25 pm

Beccaschocked wrote:I had a stable nodule for almost two years. Unfortunately, my last scan showed growth.

We opted to remove it despite a negative biopsy and I’m so glad we did as it was positive for cancer. This decision was made based on an increasing CEA (an excellent indicator for me) along with the growth.

I’m so sorry to hear you’re going through this and am sending up positive thoughts and prayer for a benign nodule.

Yes it is a good thing. Hopefully, that'll be it for you. because we get scans regularly the good thing is things are picked up early. Your story is why I get nervous every time I have a scan. Never know when it will start growing.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Beccaschocked
Posts: 30
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby Beccaschocked » Tue Jan 02, 2018 8:31 pm

susie0915 wrote:
Beccaschocked wrote:Yes it is a good thing. Hopefully, that'll be it for you. because we get scans regularly the good thing is things are picked up early. Your story is why I get nervous every time I have a scan. Never know when it will start growing.


Susie I hope my story doesn’t discourage you, I mostly wanted to share that there was also an increase in CEA, which is why we moved forward.

Sounds like there are many out there who’ve had benign nodules grow. Praying that’s the case for you as well.

I know waiting is the hardest part though!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby susie0915 » Wed Jan 03, 2018 9:19 am

Beccaschocked wrote:
susie0915 wrote:
Beccaschocked wrote:Yes it is a good thing. Hopefully, that'll be it for you. because we get scans regularly the good thing is things are picked up early. Your story is why I get nervous every time I have a scan. Never know when it will start growing.


Susie I hope my story doesn’t discourage you, I mostly wanted to share that there was also an increase in CEA, which is why we moved forward.

Sounds like there are many out there who’ve had benign nodules grow. Praying that’s the case for you as well.

I know waiting is the hardest part though!

It's okay. I know there is always a chance it can grow. My CEA has never been higher than 1.1 which was during chemo, usually is less than .5 so I don't know if it is a marker for me. I never had it taken until after I finished radiation/chemo before surgery and is was less than .5. So we will see next week how my scan goes. I try to stay positive most of the time. I have lung issues now (scarring and inflammation) that was either caused by chemotherapy or could be an autoimmune disorder. So now I see a pulmonologist every 6 months and have tests to test my lung capacity, and have to see a rheumatologist if it is an autoimmune disorder. Lol. I am officially one of those that is always has some kind of doctor appointment. It sounds like you are doing well now.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

AppleTree
Posts: 189
Joined: Fri Mar 18, 2016 8:16 am

Re: opinion on lung nodule which got increased from 3mm to 6mm after 3.5 years

Postby AppleTree » Wed Jan 03, 2018 5:26 pm

PET scan picked up small lung nodule 1 year post surgery. Too small to biopsy. I had it removed by VATS at Mass General. It was colo-rectal cancer. I am now doing Folfox. The difference with me, it had not appeared in any previous CTs (June, Feb and June). When it showed up in the 2nd June scan I got a PET scan. And had it removed.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Yahoo [Bot] and 47 guests