Iitg ritesh wrote:@susie report says serial followup to rule out malignancy. I wish your nodule to be stable or gone by December. Its very hard for me think that it has doubled its diameter after 3.5 years.
@Terri Pet scan was not done as oncologist thought its small for pet scan to pick.
GrouseMan wrote:During the course of my wife's treatment of nearly 4 years they kept an eye on some nodes in her lungs initially thought to be mets. But over that time period they never really showed any outward signs of being mets. They hardly changed at all. The only way to tell if they were mets would have been biopsies and the oncology team thought that too risky seeing as she had other known mets that they were treating already with FOLFOX, Then FOLFOX + Avastin then 5-FU and Avastin, followed by Irinotecan, Avastin, and Erbitux. No changes there at all. Measurements of small mets are kind of unreliable in my opinion on that scale. Also they are subjective as well depending on the person reading the scan. Same Radiologist both times? One might determine the boundary different than another.
About all I think you can do is take a wait and see position of this sort pf thing. Monitor all your blood work for potential markers (CEA etc....).
Beccaschocked wrote:I had a stable nodule for almost two years. Unfortunately, my last scan showed growth.
We opted to remove it despite a negative biopsy and I’m so glad we did as it was positive for cancer. This decision was made based on an increasing CEA (an excellent indicator for me) along with the growth.
I’m so sorry to hear you’re going through this and am sending up positive thoughts and prayer for a benign nodule.
susie0915 wrote:Beccaschocked wrote:Yes it is a good thing. Hopefully, that'll be it for you. because we get scans regularly the good thing is things are picked up early. Your story is why I get nervous every time I have a scan. Never know when it will start growing.
Beccaschocked wrote:susie0915 wrote:Beccaschocked wrote:Yes it is a good thing. Hopefully, that'll be it for you. because we get scans regularly the good thing is things are picked up early. Your story is why I get nervous every time I have a scan. Never know when it will start growing.
Susie I hope my story doesn’t discourage you, I mostly wanted to share that there was also an increase in CEA, which is why we moved forward.
Sounds like there are many out there who’ve had benign nodules grow. Praying that’s the case for you as well.
I know waiting is the hardest part though!
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