I'm not sure if this is what's going on, but I'm five years out and still in pain. I've been through PT and with their help was able to release an adhesion 4 years post surgery.
My quality of life kinda sucks. I've got my bowels under control - it's the pain in my ass. Not a sharp pain but a throbbing pain. Standing is OK but sitting, bending over, etc - anything that causes me to bear down causes pain.
I can barely read a book on the couch or do a crossword puzzle. It may be damage due to radiation... Just wondering if any other rectumless peeps have a similar problem.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
6/15 - HFS gone!