One year today since colonoscopy

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Chickspeed
Posts: 34
Joined: Sat Jun 17, 2017 5:16 am

One year today since colonoscopy

Postby Chickspeed » Thu Dec 14, 2017 4:55 am

It’s been 1 year to the day.

Dec 15 2016 : colonoscopy 5-6 cm growth discovered approximately 10 cm from anal verge.
Dec 29 2016: Double contrast ct scan showed no evidence of disease outside rectum
Jan 19 2017 : MRI shows T2 early T3 growth with 3 enlarged lymphnodes defined as T2/early T3 NX
Feb 15 2017: Met with radiation and medical oncologist to discuss chemoradiation
Feb 22 2017: CT scan to get tatoos for radiation treatments
Mar 6 2017: Off work to Start chemoradiation 1650mg xeloda twice a day on days of radiation treatments
April 7 2017: Last day of radiation back to work
June 20 2017: After a little more than 10 weeks of wait for radiation to continue working I go in for LAR surgery with temp ileostomy

Aug 16 2017: checkup with surgeon and review of pathology report (extrapolation of report it’s lengthy)

Pathology: All margins uninvolved, LVI not present, perineural invasion not present, tumour deposits not present. 0/10 lymph nodes involved.

YPTNM 1 microscopic invasion into submucosa only several malignant glands remain they are located in in the superficial submucosa.

Rectal lesion: Minimal residual well differentiated adenocarcinoma (less than 0.1 CM). Appears completely excised.

Aug 18 2016: Start 6 cycles of xeloda maintenance 2000mg twice a day
Sept 2 2017: surgeon clears me to return to work
Dec 14 2017: chemo completed

Side effects are mild hand and foot syndrome only.

I still have many years of monitoring and follow ups. I offer 2 of the most sound pieces of advice I can offer to anyone just beginning this journey. Frequent this site often, colorectal cancer survivors REALLY DO know their SH!T!!. AND I DON’T SAY THIS LIGHTLY STAY AWAY FROM DR GOOGLE IT’S INFORMATION IS DATED POOR AND MARGINALIZED.

I felt it would be helpful to lay out my timeline if your just starting this journey as I was 1 year ago today, you want everything to happen in a couple weeks, but i put my care in the hands of professionals and continue to do so. Their opinion was that it's a journey and be patient.

I am expecting ileostomy reversal surgery in mid march. and keeping my fingers crossed.

I just want to say that as I read about the journeys of others I deeply feel and partially understand what your going through. May god be with each and every one of you!!

Chickspeed

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susie0915
Posts: 775
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: One year today since colonoscopy

Postby susie0915 » Thu Dec 14, 2017 9:33 am

Feels so good to be done. It does consume your life for a year though. Enjoy your holidays.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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Shana
Posts: 374
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: One year today since colonoscopy

Postby Shana » Thu Dec 14, 2017 10:00 am

Congratulations on completing your treatment!

It's been a year for me since DX too but still ongoing so I know how consuming it is while you're undergoing surgery and chemo.

Best of luck to you, enjoy the holidays, you have definitely earned it!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!


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