Supplements to help/resolve LARS clustering

Please feel free to read, share your thoughts, your stories and connect with others!
delemur
Posts: 13
Joined: Fri Dec 08, 2017 10:54 pm

Supplements to help/resolve LARS clustering

Postby delemur » Sun Dec 10, 2017 12:16 pm

I'm currently taking the following probiotic in hopes of resolving/alleviating my clustering issue:
Jarrow - Saccharomyces Boulardii + MOS: https://www.amazon.com/dp/B00C76HMIS/ref=sspa_dk_detail_1?th=1

    - Can anyone recommend a better probiotic for clustering?
    - Are there any other supplements you would recommend for clustering?
I will anxiously await your response...in the bathroom.
- Sex: Male
- DX Age: 41
- Tumor Location: Proximal = 9 cm; Distal = 1.5 cm
- Tumor Type: Adenocarcinoma
- Tumor Size: 1.7 x 1.2 x 0.8 cm
- Tumor Grade: G2: Moderately differentiated (intermediate grade)
- Stage: IIIB
- Positive Lymph Nodes: Yes
- Radiation + Chemo: 03/16/17 - 29 days / 3000mg Capecitabine
- Surgery: 05/16/17 - LAR & Diverting Ileostomy
- Chemotherapy: 06/16/17 - 62 Days CAPOX / 56 Days FOLFOX
- Surgery: 11/27/17 - Ileostomy Reversal

Lee
Posts: 5677
Joined: Sun Apr 16, 2006 4:09 pm

Re: Supplements to help/resolve LARS clustering

Postby Lee » Sun Dec 10, 2017 6:05 pm

I have a permanent colostomy today because I was tied to the toilet as a result of radiation (destroyed 2/3 of my rectal muscles).

It would help if you could create a signature line and give us some background info on where you are at on this journey. Have you had surgery (reversal) recently? If it was recent, it may just require more time. Did you have rectal or colon cancer? People with rectal seem to have more bathroom issues.

There are many people on this forum who have turned to daily enemas to have control over there bathroom issues. Once a day (usually in morning) and good for the rest of the day. You can look at some of the past post in the search bar.

Hope this helps some.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Supplements to help/resolve LARS clustering

Postby O Stoma Mia » Tue Dec 12, 2017 1:23 am

delemur wrote:...Can anyone recommend a better probiotic for clustering?.

There are members here who know a lot about probiotics. Maybe some of them will have something to say. Also, you might check the embedded link in the post below.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=56711&p=449180#p449180

delemur
Posts: 13
Joined: Fri Dec 08, 2017 10:54 pm

Re: Supplements to help/resolve LARS clustering

Postby delemur » Tue Dec 12, 2017 1:07 pm

I found some other supplements through my research which I will be taking daily which help overall gut health.
    - L-Glutamine
    - Lactic Acid
- Sex: Male
- DX Age: 41
- Tumor Location: Proximal = 9 cm; Distal = 1.5 cm
- Tumor Type: Adenocarcinoma
- Tumor Size: 1.7 x 1.2 x 0.8 cm
- Tumor Grade: G2: Moderately differentiated (intermediate grade)
- Stage: IIIB
- Positive Lymph Nodes: Yes
- Radiation + Chemo: 03/16/17 - 29 days / 3000mg Capecitabine
- Surgery: 05/16/17 - LAR & Diverting Ileostomy
- Chemotherapy: 06/16/17 - 62 Days CAPOX / 56 Days FOLFOX
- Surgery: 11/27/17 - Ileostomy Reversal

ams5796
Posts: 2286
Joined: Fri Feb 06, 2009 10:07 am

Re: Supplements to help/resolve LARS clustering

Postby ams5796 » Tue Dec 12, 2017 9:20 pm

Also, there's a great LARS group on facebook. Lots of information there.





Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

teachpdx
Posts: 612
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Supplements to help/resolve LARS clustering

Postby teachpdx » Tue Dec 12, 2017 9:30 pm

You are very new to this process and it will take awhile for your body to adjust. I don't think supplements are the holy grail at this point.

MD Anderson has website with info on how to manage your diet post LAR, bowel surgery. Keeping a food journal can be helpful as well as Immodium (if approved) to slow down the gut.

Best of luck in your journey.

Peace, Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

delemur
Posts: 13
Joined: Fri Dec 08, 2017 10:54 pm

Re: Supplements to help/resolve LARS clustering

Postby delemur » Tue Dec 12, 2017 10:57 pm

teachpdx wrote:You are very new to this process and it will take awhile for your body to adjust. I don't think supplements are the holy grail at this point.

MD Anderson has website with info on how to manage your diet post LAR, bowel surgery. Keeping a food journal can be helpful as well as Immodium (if approved) to slow down the gut.


The plan I reference in my original post is from MD Anderson. The plan helps to slow down your gut with fiber rather than Immodium. I'd like to try the natural way first. Just for clarity, is this the MD Anderson info that you were referring to? https://www.mdanderson.org/patients-family/diagnosis-treatment/emotional-physical-effects/bowel-management.html
- Sex: Male
- DX Age: 41
- Tumor Location: Proximal = 9 cm; Distal = 1.5 cm
- Tumor Type: Adenocarcinoma
- Tumor Size: 1.7 x 1.2 x 0.8 cm
- Tumor Grade: G2: Moderately differentiated (intermediate grade)
- Stage: IIIB
- Positive Lymph Nodes: Yes
- Radiation + Chemo: 03/16/17 - 29 days / 3000mg Capecitabine
- Surgery: 05/16/17 - LAR & Diverting Ileostomy
- Chemotherapy: 06/16/17 - 62 Days CAPOX / 56 Days FOLFOX
- Surgery: 11/27/17 - Ileostomy Reversal

delemur
Posts: 13
Joined: Fri Dec 08, 2017 10:54 pm

Re: Supplements to help/resolve LARS clustering

Postby delemur » Tue Dec 12, 2017 10:58 pm

ams5796 wrote:Also, there's a great LARS group on facebook. Lots of information there.


Thx...I joined that LARS Facebook group a couple of days ago. Very helpful.
- Sex: Male
- DX Age: 41
- Tumor Location: Proximal = 9 cm; Distal = 1.5 cm
- Tumor Type: Adenocarcinoma
- Tumor Size: 1.7 x 1.2 x 0.8 cm
- Tumor Grade: G2: Moderately differentiated (intermediate grade)
- Stage: IIIB
- Positive Lymph Nodes: Yes
- Radiation + Chemo: 03/16/17 - 29 days / 3000mg Capecitabine
- Surgery: 05/16/17 - LAR & Diverting Ileostomy
- Chemotherapy: 06/16/17 - 62 Days CAPOX / 56 Days FOLFOX
- Surgery: 11/27/17 - Ileostomy Reversal

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Supplements to help/resolve LARS clustering

Postby O Stoma Mia » Wed Dec 13, 2017 1:36 am

ams5796 wrote:Also, there's a great LARS group on facebook. Lots of information there.
Ann

Here's a link referencing the FB group:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45808&p=458829#p458829

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

LARS

Postby O Stoma Mia » Sat Aug 11, 2018 7:36 am

O Stoma Mia wrote:
ams5796 wrote:Also, there's a great LARS group on facebook. Lots of information there.
Ann

Here's a link referencing the FB group:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45808&p=458829#p458829


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: juliezitty, tater, Yahoo [Bot] and 51 guests