I'm NED!

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tater
Posts: 55
Joined: Wed Jul 19, 2017 5:53 pm

Re: I'm NED!

Postby tater » Mon Dec 11, 2017 12:20 pm

Awesome news, congratulations.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

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peanut_8
Posts: 2230
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: I'm NED!

Postby peanut_8 » Mon Dec 11, 2017 2:20 pm

Hooray!!! Time for a Happy Dance.

Image
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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ocstacy
Posts: 238
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: I'm NED!

Postby ocstacy » Mon Dec 11, 2017 9:25 pm

Yes congrats!! Wish my mom was NED but she is Near No Evidence of Disease!! I wish you well wishes going forward, Merry X-mas!! :D
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Reversal 07/2018?
Me: Colonoscopy age 38. 08/17 Benign polp. internal hemmy's post partum

Lee
Posts: 5598
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm NED!

Postby Lee » Tue Dec 12, 2017 12:36 am

So very happy for you, congratulation.

You've had some pretty rough months, with your divorce and all. So happy that you are getting some good news.

AWESOME!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

benben
Posts: 268
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: I'm NED!

Postby benben » Tue Dec 12, 2017 12:13 pm

Welcome to NEDville! Long may you reside!

Big Congrats!
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR! - NED

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LPL
Posts: 404
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm NED!

Postby LPL » Tue Dec 12, 2017 12:25 pm

Big Congratulations!
NED is such a nice word :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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Shana
Posts: 379
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: I'm NED!

Postby Shana » Thu Dec 14, 2017 10:30 am

Congratulations! Time for the Happy Dance!

Enjoy the holidays and best wishes for continued NED! :D

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!


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