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Re: New Member here on the forum

Posted: Thu Jun 14, 2018 9:45 am
by Caat55
What big decisions,. Does that pain decrease if you keep something in your stomach? I start rpund four today and am trying not to cool about it. I have similar problem to yours but not the severe pain just nausea and odd lump in my chest. The Gummi Cares, 30 mg CBD helped. I just took first dose of Xeloda half hour ago and already have the lump in chest again. So it goes.
I eidh we had better answets. I
Doesnt Folfox still include xeloda?
Susan

Re: New Member here on the forum

Posted: Thu Jun 14, 2018 10:44 am
by retiredteacher
FOlfox is the infusion 5FU- plus the Oxi. CAPEOX or XELOX is supposed to be tolerated well - but some people more likely to have some kind of gut problems ... they say gut problems more associated with the pill - makes sense. The pain is independent of feeding schedule - I tend to graze all day to keep down the nausea. Thank you for the thoughts Susan and Susie - seems there are no clear answers.

Re: New Member here on the forum

Posted: Mon Jun 18, 2018 6:53 pm
by retiredteacher
Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase shows the weakest survival benefit and also the weakest evidence after the chemo radiation and surgery. Is completely comfortable with the call. Wants me to recover from all this and see him in two months. So - woo hoo!

Re: New Member here on the forum

Posted: Mon Jun 18, 2018 7:12 pm
by NHMike
retiredteacher wrote:Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase shows the weakest survival benefit and also the weakest evidence after the chemo radiation and surgery. Is completely comfortable with the call. Wants me to recover from all this and see him in two months. So - woo hoo!


Congrats! You're done! So reversal and then surveillance?

Re: New Member here on the forum

Posted: Mon Jun 18, 2018 7:58 pm
by heiders33
Congrats on being done! Hopefully things will only get better from here on out.

Re: New Member here on the forum

Posted: Mon Jun 18, 2018 9:13 pm
by retiredteacher
Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will call tomorrow about having the port removed. :D

Re: New Member here on the forum

Posted: Mon Jun 18, 2018 9:41 pm
by NHMike
retiredteacher wrote:Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will call tomorrow about having the port removed. :D


That sounds very good.

Re: New Member here on the forum

Posted: Tue Jun 19, 2018 6:46 pm
by Jachin
Hi guys! I’m new to the forum. I am 40 yrs old (41 this month) I’ve been having rectal bleeding after I wipe and blood on my stool for 3 years now. I went to my PCD on two occasions and was told that since I was “young” I probably have internal hemorrhoids but wasn’t confirmed after a digital rectal exam this past March. I am still having the same issues of bleeding about 75% of the time without any pain. I finally was scheduled for a colonoscopy in the morning. ( that bowel prep is really something else!) After bleeding this long, I am resigned to the fact that I more than likely have some sort of polyp or cancer but I have no idea what to expect when I finally hear the news from the doctor...