New Member here on the forum

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Caat55
Posts: 545
Joined: Sat Dec 23, 2017 6:01 pm

Re: New Member here on the forum

Postby Caat55 » Thu Jun 14, 2018 9:45 am

What big decisions,. Does that pain decrease if you keep something in your stomach? I start rpund four today and am trying not to cool about it. I have similar problem to yours but not the severe pain just nausea and odd lump in my chest. The Gummi Cares, 30 mg CBD helped. I just took first dose of Xeloda half hour ago and already have the lump in chest again. So it goes.
I eidh we had better answets. I
Doesnt Folfox still include xeloda?
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

retiredteacher
Posts: 97
Joined: Sat Oct 21, 2017 1:34 pm

Re: New Member here on the forum

Postby retiredteacher » Thu Jun 14, 2018 10:44 am

FOlfox is the infusion 5FU- plus the Oxi. CAPEOX or XELOX is supposed to be tolerated well - but some people more likely to have some kind of gut problems ... they say gut problems more associated with the pill - makes sense. The pain is independent of feeding schedule - I tend to graze all day to keep down the nausea. Thank you for the thoughts Susan and Susie - seems there are no clear answers.
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3 cm
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED. :-)

retiredteacher
Posts: 97
Joined: Sat Oct 21, 2017 1:34 pm

Re: New Member here on the forum

Postby retiredteacher » Mon Jun 18, 2018 6:53 pm

Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase shows the weakest survival benefit and also the weakest evidence after the chemo radiation and surgery. Is completely comfortable with the call. Wants me to recover from all this and see him in two months. So - woo hoo!
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3 cm
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED. :-)

NHMike
Posts: 1842
Joined: Fri Jul 21, 2017 3:43 am

Re: New Member here on the forum

Postby NHMike » Mon Jun 18, 2018 7:12 pm

retiredteacher wrote:Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase shows the weakest survival benefit and also the weakest evidence after the chemo radiation and surgery. Is completely comfortable with the call. Wants me to recover from all this and see him in two months. So - woo hoo!


Congrats! You're done! So reversal and then surveillance?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

heiders33
Posts: 314
Joined: Sat Nov 04, 2017 11:08 am

Re: New Member here on the forum

Postby heiders33 » Mon Jun 18, 2018 7:58 pm

Congrats on being done! Hopefully things will only get better from here on out.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS G12A
June-July 2017: 28 days of XEL/radiation
Sep 2017: laparoscopic LAR/loop ileostomy
Oct 2017 - February 2018: XELOX six rounds
Mar 2018: reversal
Apr 2018: CEA 2.1, normal blood counts
May 2018: CT liver spot
Aug 2018: Abnormal PET, CEA 2.4
Sep 2018: robotic and laparoscopic liver resection with HAI pump
Oct 2018: Clear CT and colonoscopy, CEA 1.7, begin six months FUDR and FOLFIRI

retiredteacher
Posts: 97
Joined: Sat Oct 21, 2017 1:34 pm

Re: New Member here on the forum

Postby retiredteacher » Mon Jun 18, 2018 9:13 pm

Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will call tomorrow about having the port removed. :D
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3 cm
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED. :-)

NHMike
Posts: 1842
Joined: Fri Jul 21, 2017 3:43 am

Re: New Member here on the forum

Postby NHMike » Mon Jun 18, 2018 9:41 pm

retiredteacher wrote:Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will call tomorrow about having the port removed. :D


That sounds very good.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Jachin
Posts: 1
Joined: Tue Jun 19, 2018 6:22 pm

Re: New Member here on the forum

Postby Jachin » Tue Jun 19, 2018 6:46 pm

Hi guys! I’m new to the forum. I am 40 yrs old (41 this month) I’ve been having rectal bleeding after I wipe and blood on my stool for 3 years now. I went to my PCD on two occasions and was told that since I was “young” I probably have internal hemorrhoids but wasn’t confirmed after a digital rectal exam this past March. I am still having the same issues of bleeding about 75% of the time without any pain. I finally was scheduled for a colonoscopy in the morning. ( that bowel prep is really something else!) After bleeding this long, I am resigned to the fact that I more than likely have some sort of polyp or cancer but I have no idea what to expect when I finally hear the news from the doctor...
41 Yr Old Male
Persistent Blood in stool for 3 yrs
Digital Rectal Exam
Fecal Blood Test-Negative
Awaiting diagnostic colonoscopy


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