Thank you Mike and Stoma and Claudia and Susan for the followup! You are amazing. Mike you may not remember posting an article detailing surgeon experience/outcome relationships - this was an eye opener for me and helped to seed the direction to go to Stanford (out of network.) As it turned out, the tumor after neo-adjuvant CRT was reduced to 3 cm located 12 cm from anal verge (Stanford MRI on Feb. 8.) In the OR, the surgeon determined that no ileostomy was required. I did feel prepared for an ileostomy <thanks to you sharing your a) challenges and b) expertise> if needed - imagine my shock when I woke up without hardware on my tummy. I thought maybe something had gone horribly wrong and the surgery was aborted, or that I was hallucinating from the drugs. No ileostomy. The surgeons were great - doc pulled in an OBGYN and they took out a remaining ovary and fallopian tube. The nurses on E3 were amazing - Pinky, Myra, Michol, Eric, Miss Nancy, Mike the Nurse Manager - could not be more impressed or happier. The baked custard!!! Like creme brûlée without the brûlée! I was trying to walk 10,000 steps daily leading up to surgery, am hitting just 5000 daily now. Path report came through yesterday, looks like 0/21 lymph nodes and just .3 cm “hot spot” left after treatment. Tired and sore but feeling really great overall and very happy. Thank-you, thank-you, thank-you!
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED.