Caat55 wrote:The CBD helped the nausea but the lump is still in my chest. Feels like When you swallow air but big time. I called oncologist to see about a reduction but am afraid even a small change will reduce my possibility of a cure.
This is my concern as well ... however my oncologist explained that the respective power hitters for RC cure are 1) the initial neoadjuvant chemo and radiation and 2) having a good, qualified surgeon. He says the evidence for this third part is weaker and the % benefit is smaller ... depending upon initial stage ... and that it is not unusual for the oncologist to have to adapt treatment to individuals. Then again, have seen Stage II folks who have skipped chemo then have it come back as a Stage IV. It just seems to me that if they've pulled over 20 lymph nodes, and they were clear, and with a good response to neoadjuvant, that would be an argument for some wiggle room in the treatment. My oncologist is saying he'll be happy if I can go five cycles, so that's the goal for now.
Never got a good initial staging, but all the later diagnostics seem to point to a Stage 2. However, the local docs were very concerned my tumor was "huge" 6 cm plus. So I know that's why he is treating it as a hard Stage 3.
Packing up and putting ourselves on a plane to Orlando for a few days after the last Xeloda. Mental health trip. Will still pack my heating pad - am needing for my feet at night - I may be sweaty hot, but feet are painfully cold. Sometimes a girl just needs a warm butter beer ...
RC, F, 63 at diagnosis, Sept. 2017
Adenocarcinoma 6.3 - 7 cm tumor (PET)
Initial path, MSS, G2,
Stage est. T3N0M0 PET only
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018
MRI Feb. 2018 for Presurgical staging yT2 N0 12 cm from AV 3 cm in size
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm in size
CAPEOX starting March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues.