Hello, everyone! We made a decision along with my dh's doctors last week that he will not be returning to work right now. There are many things that led to this decision and I am worried and have questions. My dh has only had one round of FOLFOX, but it kicked his butt to be honest. It took him a solid week to even begin to feel somewhat normal and he is still very very tired. Also, he is looking at hopefully a liver resection in a few months and then more chemo. And because he was restaged to stage 4, we applied for disability with Social Security. He has paid into this all his life and as far as I can tell he will be eligible. Do any of you have any experience with Social Security with a stage 4 diagnosis? From what I have read it seems pretty straight forward, but there has to be a catch somewhere. Right now he is getting paid from his short/long term disability company that he bought through his work, but they require you to apply for social security when it goes to long term and it will in two weeks. I'm just so overwhelmed, as he is the sole bread winner and it isn't really an option for me to go to work due to my own health issues and of course taking care of him and our family. My main concerns are of course the social security getting approved and in place quickly and also what we will do for insurance once his leave runs out at his job next year around March. Any and all advice would be great! Thanks!
Last edited by prayingof3
on Wed Jan 17, 2018 12:28 pm, edited 1 time in total.
Caregiver to husband age 49-stage IV
09/17: Colonoscopy and mass found at rectal sigmoid junction partial obstruction
10/17: Laparoscopic LAR surgery
10/17: Pathologic staging from surgery pT4a N1c with 4 tumor deposits, perineural invasion present,14/14 lymph nodes negative, clear margins, moderately-differentiated
11/17: PET scan performed-lesions found in liver and lungs
11/17: Met confirmed to liver
11/17: Restaged to stage IV
11/17: Started FOLFOX-Avastin
12/17: Confirmed KRAS G12V